My mother age 61 was recently diagnosed with neuroendocrine carcinoma, with mets to the spleen and liver. A golf sized tumor was removed from her left temporal area in Nov. She is doing great, has almost completed 5 weeks of radiation to that area. Her spleen has 2 small tumors on it, and 1 small one on her liver, after completed her PET scan yesterday, the doctor said they saw a tumor on her lymph node on her aorta. They will be having a meetin on Tue to discuss treatment options. No other tumors identified. They say this kind of cancer does not respond well to chemo, but I have done some research and found 4 different kinds of chemo drugs that stated had showed some promise in treating, 2 are acombination used to treat prostate. Doctors here don't seem to be familiar with this type of cancer. Do you have any advice as to any other treatment options, chemo, removing of tumors?

Thank you!

Jana