I have Scarcoid and right now I feel it is in remission. My blood pressure is running real ow and so is my sugar. Dr. has taken me off Metformin, still low. I always run very high and so does my sugar. Right now with feeling so much better, I can tell when it is present (sarcoid) and I believe my Dr. thinks I am crazy. Can this happen.
I have Sarcoidosis and it has went several places, right now it is in remission, I can tell. I always feel so much better. When the sarcoid is active, my blood pressure is sky high, heart Dr. office, 187/113. He was not worried because of the gap and my sugar runs about 260-280 when it is active, I tell them this and I am sure they do not believe me. Right now, it is better and I am on to many meds, they work ok when I am active. Hate to see what it would be without meds, but now it is to low, blood pressure is low and so is sugar. Dr. took me off metformin, still on lantus, and on all the heart meds for blood pressure, and more. Where can I go to get all the test for this Disease and get my meds right, Can I with it being in remission! I causes many damaging things to me when it is active and I am not being taking care of for the Sarcoid. I believe not enough is known.