My 7 yr old has some cafe au lait spots (about 8) and has had pitirosis last year. Dr. referred us to Dermatologist to rule out neurofribomitosis, we are going in October. Also gets blotchy skin red/white blotches if chilly.....not a rash more like a pigmentation changes that fade away. Had pulmonary stenosis repair and ASD repair when 8 months old. I am very nervous about neurofribomitosis, google is a terrible thing, how common is it in people with congenital heart defects?
Asked On : Mon, 1 Oct 2012