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My Son, 20 Autistic Has Regressed In All Areas Of

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Posted on Thu, 22 Aug 2019
Question: my son, 20 autistic has regressed in all areas of functioning 1-2 ears ago. including daily living skills, loss of the ability to speak is main concern. has had blood work and MRI with no findings. receives ABA, SLP services, counseling with little progress. Also loss of use of hands... does not seem to be able to play video or computer games. Has not had EEG or test for MS, ALS...
doctor
Answered by Dr. Sumanth Amperayani (7 hours later)
Brief Answer:
I have gone through the records and they are suggestive of autism

Detailed Answer:
Hello... I understand your concern and I am extremely sorry for your son's diagnosis.

I have gone through all the records and they are suggestive of of Autism and in the history or in the doctor's notes wise there is nothing suggestive of multiple sclerosis or amyotrophic lateral sclerosis.

Moreover the MRI brain has been normal.

If your concern is really about the lack of usage of hands, then please be informed that ALS, does not present only with hands and is rapidly progressive disorder within months.

But if you are really concerned to rule this out then the only way will be to get an EMG and NCV done.

But clinically it is not indicated please.

I am again sorry for being blunt but please do remember that I have to give you my unbiased professional opinion keeping your Goodwill in mind.

I wish your son a bright future and recovery.

Best regards - Dr Sumanth Amperayani
Above answer was peer-reviewed by : Dr. Vaishalee Punj
doctor
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Follow up: Dr. Sumanth Amperayani (24 minutes later)
Why so much regression? Yes, XXXXXXX has been diagnosed with autism. He was not like this during the first 14 years of his life. He was delayed, had anxiety and socially awkward with unknown people. I know other young adults with autism that never had such huge regression. If this is purely due to anxiety or autism related how should I proceed? how would you treat him? He will not take meds. I put the Lorazepam in his water.
doctor
Answered by Dr. Sumanth Amperayani (10 hours later)
Brief Answer:
Principles o fmanagement of autism

Detailed Answer:
Hello..I can give you the general principles of management of autism please.

There are three main features in Autism -
1. Verbal and nonverbal communication.
2. Relating to others and to environment.
3. Flexible behaviour and mingling with others.


Any loss of speech, babbling, gestures, or social skills should be taken very seriously, as regression is a major red flag for autism.

These are my suggestions for you on how to deal with and communicate better with an autistic person.

1. Please stick yourself to a specific schedule and as far as possible do not try to deviate from this. I am telling this in the sense that there should be a structured timetable guaranteed activities at home or at therapy center and even the learning and daily activities. Even a slight change in the schedule or an unplanned activity or a trip or work can upset and autistic person and make him more uncommunicative and frustrated. All the activities which you have mentioned like simple reading and writing exercises should be in a specific time frame for them to be successful. This is the only thing which you can do to improve the writing and reading and learning exercises.

2. Positive reinforcement adds a lot to the management and also helps in better communication. Even the slightest improvement in language or reading and learning skills need to be uplauded a lot so that, this experience will encourage him to make it even more successful.

3. Sometimes an autistic person may communicate to you in non verbal sign language. I will tell you a small example of how this may look. A person who prefers to talk at home for a simple reason like thirst or hunger may not communicate in a verbal language in an atmosphere which he may not like. For example at school or with the therapist he may just indicate that he is thirsty or he is hungry by sign language. I suggest you encourage him to be more available in any atmosphere or surroundings. This may initially be stressful for both him and you. But gradually as the time progresses he will learn that he needs to be the same at every place and expression in verbal language will make him connect better with his peers or his colleagues.

4. At times when frustrated or when deviated from structured work schedule or daily schedule he can become violent and may show symptoms of temper tantrums. I suggest you try to find out patiently as to what is the root cause of the tantrum. Most of the times it will be deviation from a regular schedule which you should be taking care of effectively. This in turn will improve his communication with you.

5. Coming to the aspect of reading and writing, one important point you must remember while dealing with him is that he should do such learning activities in different places and not a single place like a therapist office or at school. Please try to be communicative with him and try to do similar activities even at home or some other place also like a relative's place or a friend's home.

6. During the tantrums or extreme frustration of an autistic person please make sure that he is in safe surroundings and he does not get to acquire things which can injure him physically.

7. Again coming back to the aspect of reading and learning try to make him learn a complex task by breaking up it into small commands. For example I can tell you - rather than telling him to go to the other room and get his work book and start writing a paragraph - you can modify it as breaking it up into small commands or individual commands for each single task like - first go to the room, after he goes there, follow him, then start giving each of the task which you require him to do as individual commands including breaking up of the sentence formation in the particular paragraph.

8. Daily at least spend some time to have some recreational activities or fun and these activities will be decided by him.

9. Coming to the communication part and how to improve it - please try to find out or figure out a common area of interest and start with it and from that you can branch out to different areas of interest which you find out and try to build up the conversation which will interest him and keep him occupied in conversation.

I wish your son a bright future. If you need any future medical consultation and suggestions, I will be glad to help. You can approach me at the following link.
Once the page opens there will be an option below my image as – ASK ME A QUESTION – click on it.
In this way even in health care magic you can follow up always with a single doctor who knows the history of your kid completely. Please find the link below -

www.healthcaremagic.com/doctors/dr-sumanth-amperayani/67696

Best regards - Dr Sumanth Amperayani
Above answer was peer-reviewed by : Dr. Yogesh D
doctor
Answered by
Dr.
Dr. Sumanth Amperayani

Pediatrician, Pulmonology

Practicing since :2003

Answered : 8339 Questions

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My Son, 20 Autistic Has Regressed In All Areas Of

Brief Answer: I have gone through the records and they are suggestive of autism Detailed Answer: Hello... I understand your concern and I am extremely sorry for your son's diagnosis. I have gone through all the records and they are suggestive of of Autism and in the history or in the doctor's notes wise there is nothing suggestive of multiple sclerosis or amyotrophic lateral sclerosis. Moreover the MRI brain has been normal. If your concern is really about the lack of usage of hands, then please be informed that ALS, does not present only with hands and is rapidly progressive disorder within months. But if you are really concerned to rule this out then the only way will be to get an EMG and NCV done. But clinically it is not indicated please. I am again sorry for being blunt but please do remember that I have to give you my unbiased professional opinion keeping your Goodwill in mind. I wish your son a bright future and recovery. Best regards - Dr Sumanth Amperayani