Brief Answer:
Multiorgan involvement, needs management
Detailed Answer:
hello there!
Thank you for asking. I read your query and understand your concern for these horrible multitude of complaints you have. Well Dr Salazar has nailed the diagnosis for you. It looks like Behcet's. The eys, joints, oral cavity involvement with recurrent aphthous ulcers, associated with systemic morbidities.
I want oyu to know that it is not contagious so you can love your grand babies as much as you can. Dont worry behcet's is not mortal enough only 5 % rate at average span of 7.7 years is reported. But the issue is morbidity and complications due to multi organ involvement.
Some times its too early to diagnose Behcet's as there are many systemic diseases which present the very same way like
Amyloidosis, AA (Inflammatory)
Antiphospholipid Syndrome
Inflammatory Bowel Disease
Paraneoplastic Syndromes
Polyarteritis Nodosa
Systemic Lupus Erythematosus
Wegener Granulomatosis
so one should have a plan to sort out these etiologies before blue printing the behcet's for you.As behcet's is a diagnosis of exclusion.
Now lets suppose you are behcet's so here is what you need.
First you need to treat your infections early and aggressively as they worsen the symptoms and progressess the behcet's and its pandoras box opens.
Now you have gastric manifestations for behcet's so you ned to follow the diet advised for Inflammatory bowel disease patients which include high fiber and water intake and easil digestible foods. A dietitian will be required for a full dietry plan. SO consult one.
now people with behcet's are very vulnerable to vital organs derangements like fistula formation, perforation, severe bleeding, pulmonary aneurysms,Ventricular aneurysms,
coronary thrombosis, endocardial fibrosis,Glaucoma, cataracts, and
retinal detachment and CNS involvements like aneurysms and clots.
SO you need a complete medication plan for your disease which involves corticosteroids Oral/ injectible, Immunomodulators like infliximab, etanercept, colchicine etc, and some immunosuppresants like azathioprones and cyclophosphamides. For which you
need a rheumatologist and a lot of perseverence as it will take time to respond. Its not the matter of hours or days. Months are here we are talking about.
Now last but not the least pain. SO this geriatric pain needs a lot of management and this needs to be handled by chronic pain management specialists.
This disease is a multiorgan involving systemic one and it needs a team of doctors which should include
Rheumatologist
Urologist for genital and urologic lesions and involvements
Neurologist for CNS involvement
Ophthalmologist for ocular disease and monitoring
Gastroenterologist for intestinal disease
Dermatologist for possible help with recurrent skin lesions
Surgeon, when indicated
Nephrologist for proteinuria or hematuria
Pulmonologist or cardiologist in rare cases of intracardiac or
pulmonary thrombosis and aneurysms.
Hope you got what you were looking for. Keep fighting It. It will take time.
If you have any more queries please feel free to ask , i would love to answer , other wise kindly close the discussion and rate the answer as per your experience.
Good Luck and take some very good care of yourself.
May the odds be ever in your favour.
Regards
Dr. S Khan
Note: For more detailed guidance, please consult an Internal Medicine Specialist, with your latest reports.
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