Dilantin

What is Dilantin?

Dilantin is a drug used in the treatment of epilepsy especially grandmal epilepsy and pschcomotor epilepsy. It is also used in the treatment of irregular heart beats and a condition called trigeminal neuralgia. Trigeminal neuralgia is a painful condition which produces brief episodes of stabbing facial pain.

Questions and answers on "Dilantin"

My husband has been taking 500 mg of Dilantin for 14 years........in 2011 he was admitted to the Er because he was groggy. Paranoid, nauseous, shaky and then developed Vertigo.
When he was admitted they found his Dilantin levels were really high ?? Don't know the number but after th tree weeks they were ok and he was sent home on 400 mg a day
Now it turns out, his levels are too high again.....he has been shaky. Nauceous, feeling awful so I asked his Dr to check his Dilantin levels......sure enough they were too high.......she says the level was 93 when it should be 60..............Now I see, from other people that levels should be around 20........what is the proper level ??
He is now on 350 for awhile but I am getting him to drink lots of water in the hope of diluting the levels sooner than just lowering daily amounts......we're confused. .........


doctor1 MD

Hello.

Dilantin (Phenytoin) dosage for maintainence levels for seizure disorder are 300-400mg/ day for adults. However, for some reason this dose is too high for your husband as evidenced by the total phenytoin levels in the blood. You are right about the normal levels - it should be ideally...

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My nephew was prescribed Dilantin when he was two years old. he continued to take it till he was eight and then it was stopped since his problem of seizures was cured. While on Dilantin he developed scaly skin on his stomach, neck and hands etc. Another problem was sudden and excessive watering of eyes. Both these problems are still continuing even though he is now 16 years old. Eye examination is normal but for ski the doctors say it is allergy. Couldit be that both these problems are side effects of Dilantin. How can they be cured?

doctor1 MD

Hello!

Thank you for asking on HCM!

Regarding your concern, I would explain that as Dilantin has been stopped, even her adverse effects can not occur now.

You should know that Dilantin does not deposit in human tissues and its effects last for a short time after stopping its intake.

The scaly...

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If you have Dilantin toxicity, what do you do for a pt to decrease this amount in blood stream. Say, 72.7 Dilantin level
is the concerning number. Pt has nausea and vomiting and just had a lung biopsy and went without breakfast. Pt presents to the er with N/V. What tests would you run besides BS, CBC, Dilantin Level?

doctor1 MD

Hi, dear
I have gone through your question. I can understand your concern.

Dilantin toxicity is emegency condition and airway and breathing should be taken care first.

Multiple dosage of activated charcol should be given for GI decontamination.
Benzodiazepines are given to control seizures.

Many...

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I am 48 years old, female and healthy. I am epileptic and take 200 mg of Dilantin daily. I am active - I live at an altitude 9000 ft & I run a couple miles 2-4 times a week. I work long hours (desk job). I try to eat organic whenever possible, and I eat what I believe is a well-balanced diet of fruits & veggies. And I do not drink alcohol. In the last 6 months I applied for life insurance & was turned down - they sent me the results of my blood tests - a couple of results stood out to me - Alkaline Phosphatase = 139; GGT = 343; AST 30. What little I ve read on this I understand these particular tests are for my liver function. My neurologist does not think it has anything to do w/ my Dilantin, however I ve been taking this drug since I was 15 years old and it s the only thing I can think of that would cause these wacky high numbers. I had another follow-up ALP & GGT test run just 2 days ago but have not received back the results. I ve changed my diet to include beets and a liver supplement called Livaplex, so I hope this helps. But do you have any additional thoughts? Thank you, Kim

doctor1 MD

Hello! Thanks for putting your query in HCM. I am a Gastroenterologist (DM).

Derranged LFT may be due to dilantin or may be due to some other causes so I will advise to see for other causes for derranged LFT and if it is not there then you may have to replace dilantin with other least hepatotoxic...

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My husband is taking dilantin , rivastigmine , anticuagulant, acid folic , vitamins etc. He start taking these medication after a brain surgery, because a coagulus he had in his left side of the brain. His surgery was in december/ 2012. He is feeling now, shaking or tremor in his hands and feet. Today he was shaking all his body and feel weak in his legs. Do you think is a consecuence of these medications?

doctor1 MD

Dear friend,

I am Dr. (Col) R Karanwal, M.D. (Internal Medicine), Consultant Physician, for your assistance.

Thanks for posting your query on this website. I fully appreciate your concerns.

Tremors (if present even at rest) are possibly due to occurrence of Parkinson's disease (?following surgery...

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can doctors overlook or ignore side affects. was taking 3 100mg dilantin. not having bad side effects. told level too low, take 4 pills. about a week started having bad headaches, staying in bed, problems walking. legs felt like jelly, had to use cane then walker. level checked 27+, told toxic. stop for 1 night, then go back to 3 pills. informed doctors , still having problems with legs (using cane and walker), problems breathing after a short distance and some memory problems. was told by doctor that i am trying to find something or someone to blame. was not having these problems before taking medication and definite not before the 4 pills.

doctor1 MD

Hi,
Thank you for posting your query.
Though your doctor is the best judge, as he has had the chance to examine you also, I would feel that dilantin is responsible for your current symptoms.
Dilantin is known to produce imbalance, dizziness and ataxia at toxic levels. Your blood level for...

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I take 400mg of dilantin daily. For about 3 months. I have had epilepsy for around 10 years. Im interested in taking some magic mushrooms but I want to know if its safe while on dilantin. I have eaten mushrooms in the past 10 years and had no problem, but I was not on any anti convulsant at that time.

doctor1 MD

Hi & Welcome to HCM.
As such there's no documented harmful interactions between the two, it is better to avoid consuming mushrooms as long you take Dilantin (Phenytoin) for the effective control of epilepsy.
Hope this will help you.

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I should have mentioned that my daughter was only given the loading dose if dilantin if 1000mg and then 100mg next day before it was stopped (wisely) to do the video EEG. I was very relieved that her following seizures were not epileptic and that she would not be staying on the dilantin. As far as the psychogenic seizures go, she certainly falls in the main demographics for it. She already is on lexapro and has had a lot of past trauma as her boyfriend died by suicide two years ago. She has been in solid very consistent counseling since. My questions are a couple. She had the dilantin on April 2. Would this still be bothering her? Nausea every day and a lot of diarrhea. Also, the seizures happen after eating and begin with her thinking she is about to vomit. Is it possible that something else is going on that could be causing the seizures. We're not in denial about the psychogenic seizure idea just feel there is something else going on. Thank you for your help.

doctor1 MD

Hello,
Thanks for the query
I understand your concern
Please note that the treatment of seizures/epilepsy depends upon the diagnosis and exact classification of the type of epilepsy. This is done by EEG and/MRI scan of the brain. Some patients can have non-epileptic seizures and some have both....

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Have a menegioma and Dilantin level lowered to 200 mg pm 100 mg am. Down 800 mg per week. Level is 6.7.
Am lightheaded (not dizzy) balance off once in awhile. Is this level to low. Dr. wants to lower lever 100 mg
monthly. Had a grandmal sizure 5 yrs ago. Previous dr. kept my levels between 10 and 20. Lately levels
have been inconsistent 6.7 to 24. Previous dr. would change amt taken to keep it balanced. New dr.
says 6.7 is fine and I should consider surgery. She want me to go off Dilantin totally. I'm 74 yrs old with
fairly good health. By the way... want a excellent neurologist in Menifee/Murrietta/Temecula calif. area

doctor1 MD

Hi,
Thank you for posting your query.

There are two issues here-

1. Whether or not we should do surgery for meningioma?
2. The appropriate dose of dilantin.

Meningioma can only be treated by surgery. There are no medicines to make it disappear. So, if the tumor is large or is in a critical part...

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Recent questions on  Dilantin

doctor1 MD

I am 24, female. When I was 12, I had a grand mal seizure. After 1 year, I got an another one. After that, I was on dilantin for 4 years. My EEG, CT scan were all normal. I discontinued it in april,2005. Now, I am without medication since then and have not got any other seizure till now. (My brother also had a seizure once) Is there any chances for recurrence? Am I cured?

doctor1 MD

I`m a 33 year old male, 5' 10" currently 194. When I masturbate, right after ejaculation, I urinate automatically. I believe I may have been doing it for the last several years. But I`ve just realized it was not normal. I thought it may have been Retrograde Ejaculation. But I read somewhere else it wasn`t. I was born with Spina Bifida,( Myelomeningocele) and Hydrocephalus. I take Dilantin and Phenytek for Epilepsy. I also take Zoloft and Celexa for Anxiety,OCD and Depression. Thanks

doctor1 MD

Hello, A doctor prescribed vitamin B6, was taking it but when iwent to buy more i bought the super b complex. Will it have effect on the body? My urine is so yellowish for week, also having pain in the stomach, mostly lower abdomen, what could be the cause? Pin in the legs joints. I also take Iron, Dilantin & Keppra. Had a head surgery last month. Thank you.

doctor1 MD

I have epilepsy. Is it safe for me to take homeopathic HCG drops for weight loss? A friend of mine has had great success with this. I take 400mgs of Phenytoin(Dilantin) plus 150mgs of Lamictal per day(maint. level @ 15). My last seizure was 14mos ago. (which is common for me; one a yr maybe) The seizures started in my mid 30's, I am 43 now. 5'6, 166lbs. Tests show no explaination. In good physical athletic condition. No allergies or other health issues. Had tubal done after 3rd child, developed endometriosis, had a complete hysterectomy. I do not take hormone replacements. I feel great but I'm burdened by an unappriciated amount of belly fat. I feel like I need help reaching my weight loss goals(25-30lbs)

doctor1 MD

I was treated for strep about a month ago. Also had nasal congestion and cough . It finally seemed like the cough was going away, and then this morning I woke up and my throat was a little scratchy not sore just a little scratchy, and I have a...

doctor1 MD

hello, I am taking keppra and dilantin , I took a dose of keppra at 8 pm. I had to take 3 pills of dilantin now at 10, and instead I took another keppra pill which is 500 mg each. What do I do. Sh#)ould I take the dilantin dose now. It is 10:30...

doctor1 MD

my husband black male about 2 years ago stared having seizures.At night haves cold sweat cold feet hands sweats cold. take 3 Dilantin morning 3 night.Some times level high sometimes low change dosages from 3 night 2 morning.Sometimes high.NOt...

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