Hi I have a granddaughter that has open lip schizencephaly . She has had seizures. Her left arm is weak, She has trouble holding anything. It just hangs there. Her foot and ankle are twisted and she ... View answer

My girl friend did MRI scan and the summary is this. MRI appearance advocates: - Arachnoid cyst left temporal pole above; - Arachnoid cyst left posterior temporal lobe; - Schizencephaly closed right ... View answer

life expectancy of mother ... View answer

Am on oxygen almost 24/7 with pulmonary fibrosis and on the new medicine Embriot(?) what kind of life expectancy can I expect? 78 now. If I take care of myself, can I expect a normal expectancy? ... View answer

What is life expectancy after whipples surgery? ... View answer

How can I find a psychiatrist who has knowledge of schizencephaly? My daughter grew up with seizures from her schizencephaly and has developed paranoid schizophrenia which has been hard to manage. I ... View answer

My 2 yr old son has unilateral closed-lip schizencephaly. He has a small cleft and has above ... average life expectancy is for a child with a mild cleft is. ... View answer

HELLO MY SISTER ERICA WAS DIAGNOSED WITH SCHIZENCEPHALY WHEN SHE WAS 3..SHE IS NOW 32. SHE LIVES A NORMAL LIFE, NO MEDICINE, 2 HEALTHY KIDS. HER MOTOR SKILLS ARE OFF, SHES NOT PHYSICALLY STRONG A LITTLE ... View answer

My son has many neurological conditions (bilateral open-lipped schizencephaly, septo optic dysplasia, optic nerve hypoplasia, autism and sensory processing disorder) and has some extreme behavior ... View answer

My grandson has schizencephaly. He is now 24 and is a joy. He has both hemispheres involved-what changes will he be going through within the next few years. His granddad is 73 and I m 72 and Sugn has ... View answer