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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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What Treatment To Be Taken For Neurofibroma?

i am sana from Pakistan ( Rawalpindi ) 23yrs old.i m the only one in my family with nf1 I have neurofibromas all over my body I can describe them as WORSE so far. And I am so afraid that it might turn out WORST as I grow older : ( My whole life is severely affected because of my condition. I am always neglected and bullied because they say I am ugly.I have no self confidence. I am always depressed and in deep sorrow because of this.Often people will ask me about these stuff that are growing all over my body...I feel so embarrassed all the time. I am tired of this scenario :(( and am also afraid that someday nobody would hire me for job and marriage cause of this...:( I am afraid that if I lose my parents SOMEDAY....I know I WILL LIVE ALONE. :(( I DON T KNOW WHAT TO DO..:(. Should i Surgery ? i have many on my brest , back neck :( or suggest me Doctor for surgery.
Thu, 24 Apr 2014
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General & Family Physician,  's  Response
Hello, Sana
When fibrous connective tissues combined with NERVE SHEATHS & develops as in tumor form is known as NEUROFIBROMA .
According to your history , you may have generalized neurofibromatosis .
I don't know much about Pakistan's surgeon but only removal of the tumors is safe & simple is recommended .
If these tumors are in spinal area or involvement of spine is there it require only urgent care.
If spinal area is not involved you can take some time.
Please contact a general surgeon and get its surgery ( multiple and many times according to site and size of tumors).
As far as concerned about ugliness and your marriage status ( forthcoming ) need not to worry , be confident and don't take any step in hurry.
First of all tell whole thing to your partner ( would be ) about your disease and particularly your would be husband must consult with your treating surgeon and thereafter take some concrete step.
Be confident , god will grace you good and good .
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What Treatment To Be Taken For Neurofibroma?

Hello, Sana When fibrous connective tissues combined with NERVE SHEATHS & develops as in tumor form is known as NEUROFIBROMA . According to your history , you may have generalized neurofibromatosis . I don t know much about Pakistan s surgeon but only removal of the tumors is safe & simple is recommended . If these tumors are in spinal area or involvement of spine is there it require only urgent care. If spinal area is not involved you can take some time. Please contact a general surgeon and get its surgery ( multiple and many times according to site and size of tumors). As far as concerned about ugliness and your marriage status ( forthcoming ) need not to worry , be confident and don t take any step in hurry. First of all tell whole thing to your partner ( would be ) about your disease and particularly your would be husband must consult with your treating surgeon and thereafter take some concrete step. Be confident , god will grace you good and good .