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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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What is the treatment for spinal muscular atrophy in a 8 month old?

Dear Dr., This is Zoe Zhao writing from China. And this email is not writing for me but for a little girl, who is caught a disease name SMA (spinal muscular atrophy) like your baby. Her mother is calling for help and she can t find solution in China. Now her baby is 8 months old. But the poor little girl can’t raise her head easily and turn over, sit by herself. With poor muscular tension, she can move her hands and feet. Now, it seems that she has a little dysphagia and eats less everyday. I wonder whether there is a solution overseas and where should the mother go for help. Her family is so loving the baby, please provide them what you know about the therapeutic method. Don’t let the poor children go, please, she at just coming to this world. I leave my email address and look forward to your kind reply: YYYY@YYYY
Tue, 29 Nov 2016
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Pediatrician 's  Response
very sadly this baby is suffered with sma type l which is veryserious condition without ant known treatment at resent. this baby will not live longer than one or one and half year. this is very ugly truth but baby's family should be prepared for that.
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What is the treatment for spinal muscular atrophy in a 8 month old?

very sadly this baby is suffered with sma type l which is veryserious condition without ant known treatment at resent. this baby will not live longer than one or one and half year. this is very ugly truth but baby s family should be prepared for that.