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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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What Could Be The Life Span Of A Person With Brain Tumor?

My daughter has been told her brain tumor is terminal now I know that they cant do anything for her except radiotherapy, but because she had a bleed on the brain after the operation this has now caused a clot and they have said treatment may be delayed for 3 months can you tell me what her life span will be. I know she is going to die and I cant accept that, at first they thought the Tumor was grade 2 but when they operated they now say its grade 3
Fri, 2 Jan 2015
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Neurologist 's  Response
I'm very sorry for your daughter's condition and what you must be going through as a parent. I'm certain your family is dealing with a MOST DIFFICULT situation and wish you only the most remarkable recovery....it can happen! However, in order to make some types of predictions on her conditions we would need much more information than you've given. You've not said anything about the type of tumor, it's location, or whether it is the result of a metastasis elsewhere in the body or if it's primary to the brain. Also, you've not specified the age of your daughter or neurological deficits she's experienced following the bleed and whether or not she has any other medical conditions that could be complicating the picture such as diabetes etc. Now, even with all this additional information you must realize that no person can possibly give an accurate guess as to long term outcome and especially without having seen or examined her. But, if such a thing were possible then, the best person to ask this question of would be her oncologist or surgeon.

Please allow me to relate a personal story of a miracle recovery which is of personal importance.

Our youngest daughter was not expected to make it since she was only born weighing 19 oz. at 26 weeks gestation. No baby at this Academic Hospital in one of the most sophisticated neonatology wards in the country of this age and weight had ever survived without major neurological deficits. Most of the babies like her expired inside of 2 weeks....a few made it for a couple of months and then, died of complications. 3 months after birth her lungs were simply not able to keep up with everything because they were just too immature. She was on the brink of expiring after even experimental treatments had been tried and failed miserably. She had suffered a brain bleed, 3 cardiac and respiratory arrests, and some of the best neonatologists in the country told us they had run out of ideas on what to do as she continued to become more and more deficient in oxygen. She was showing signs of suffering- so much so that one night I told my wife and her nurse that if the doctors could not give us any more hope and she would continue to go down hill that I would simply want her disconnected from every machine she was on and have all the multiple tubes withdrawn from her body as well as the tracheal tube which she had in place for the past 3 months of her life. I wanted her to be comfortable and not die hooked up to useless machines and tubes.

Then, literally, within days of that her lungs started to pick up their function and the doctors had no explanation for it to the point where within the next week we were able to extubate her completely and we heard her cry for the first time. She spent the next 4 months in the hospital and finally came home with us.

She will celebrating her 17th birthday in 2 days. She is a violinist, a pianist, is fluently bilingual, and reads so ravenously that her Literature teacher can't give her enough books to read to keep her active in class! I tell you this because miracles do happen much to the shock of her physicians who had simply believed her condition would be like every other baby they had treated in the history of the hospital. That time it was different.

Please stay positive because the more positive you stay the more positive your daughter stays and there are incredible things that happen in the body that no doctor can explain with the immune system or with entities such as tumor growth and regression that nobody knows about....they just happen. Stay positive and make each day as great and filled with family interactions as you can and don't give up that posture no matter who tells you what.

If you and your family believe that your daughter can win this battler then, she will believe it as well and you'll be surprised to see how she can get better....perhaps....all the best to you.

If you would like to discuss her case at any length, I am a neurologist and can be reached by writing a message through my page located at:

bit.ly/drdariushsaghafi
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What Could Be The Life Span Of A Person With Brain Tumor?

I m very sorry for your daughter s condition and what you must be going through as a parent. I m certain your family is dealing with a MOST DIFFICULT situation and wish you only the most remarkable recovery....it can happen! However, in order to make some types of predictions on her conditions we would need much more information than you ve given. You ve not said anything about the type of tumor, it s location, or whether it is the result of a metastasis elsewhere in the body or if it s primary to the brain. Also, you ve not specified the age of your daughter or neurological deficits she s experienced following the bleed and whether or not she has any other medical conditions that could be complicating the picture such as diabetes etc. Now, even with all this additional information you must realize that no person can possibly give an accurate guess as to long term outcome and especially without having seen or examined her. But, if such a thing were possible then, the best person to ask this question of would be her oncologist or surgeon. Please allow me to relate a personal story of a miracle recovery which is of personal importance. Our youngest daughter was not expected to make it since she was only born weighing 19 oz. at 26 weeks gestation. No baby at this Academic Hospital in one of the most sophisticated neonatology wards in the country of this age and weight had ever survived without major neurological deficits. Most of the babies like her expired inside of 2 weeks....a few made it for a couple of months and then, died of complications. 3 months after birth her lungs were simply not able to keep up with everything because they were just too immature. She was on the brink of expiring after even experimental treatments had been tried and failed miserably. She had suffered a brain bleed, 3 cardiac and respiratory arrests, and some of the best neonatologists in the country told us they had run out of ideas on what to do as she continued to become more and more deficient in oxygen. She was showing signs of suffering- so much so that one night I told my wife and her nurse that if the doctors could not give us any more hope and she would continue to go down hill that I would simply want her disconnected from every machine she was on and have all the multiple tubes withdrawn from her body as well as the tracheal tube which she had in place for the past 3 months of her life. I wanted her to be comfortable and not die hooked up to useless machines and tubes. Then, literally, within days of that her lungs started to pick up their function and the doctors had no explanation for it to the point where within the next week we were able to extubate her completely and we heard her cry for the first time. She spent the next 4 months in the hospital and finally came home with us. She will celebrating her 17th birthday in 2 days. She is a violinist, a pianist, is fluently bilingual, and reads so ravenously that her Literature teacher can t give her enough books to read to keep her active in class! I tell you this because miracles do happen much to the shock of her physicians who had simply believed her condition would be like every other baby they had treated in the history of the hospital. That time it was different. Please stay positive because the more positive you stay the more positive your daughter stays and there are incredible things that happen in the body that no doctor can explain with the immune system or with entities such as tumor growth and regression that nobody knows about....they just happen. Stay positive and make each day as great and filled with family interactions as you can and don t give up that posture no matter who tells you what. If you and your family believe that your daughter can win this battler then, she will believe it as well and you ll be surprised to see how she can get better....perhaps....all the best to you. If you would like to discuss her case at any length, I am a neurologist and can be reached by writing a message through my page located at: bit.ly/drdariushsaghafi