my daughter has ciari malformation. she has had extreme headaches for almost two years daily. she had surgery two years ago, but only had two weeks of being pain free. I heard about an actor who had had bad headaches for years. after he died they checked his brain scans , mri, cat scans. a doctor discovered he had two blood vessels that had grown close to each other and got kinked, the doctor said it is fixable and didnt know why his doctors hadnt noticed it.