i have been hospitalized 2x every yr for the past few yrs. i was dx with rrms in 2008 but they backdated it to 2006 when i first had my symptoms, trying to get help thru my primary physician, then a gastroenterolgist saying i had gastroparesis then a trip to shands. about 6 months later a lost feeling in my feet and legs resorting to using a cane and being referred to a nuerologist at usf i have been thru all medications shots, tysabri (jc positive), and each of the oral medications. my body rejected each treatment. the last was aubagio with 3 hospitalizations this year.when i was taken off this. I had been on steroids several times to treat my relapses but usf changed doctors and this one isnt easy to get calls returned. or getting him to visit me in the hospital which is relatively close to his office. I have been told by this doctor i have progressive ms because of the amount of lesions that are active in my brain- very little brain matter has not been affected by lesions and this past time i had no mobility inmy hips down and was in wheelchair much of my lesions old and none were active and my body was rejecting the medications and i received plasma transfer 5x and over 10 days after 3 days of the steroids before that in the hospital. within hours of my last plasma transfer i was released. i have been in a wheelchair for since june and finally this week i asked my home physical therapist to order me a manual wheelchair since i have been getting around house using transport through my primary physician which is being delivered. I was release from hospital on 6/28th with orders to see my neurologist within 4 weeks but still have not heard back from him to schedule this appointment. what comes after primary ms? are there any medications specifically for primary ms rather than the rrms