Sorry to hear that your daughter has some issues related to spleen.
From the history, what I could infer is that she has features of extrahepatic portal venous obstruction. It's not so uncommon in children. Sometimes there can be inciting factors such as umbilical sepsis or catheter insertion during newborn period but most of the time cause is unknown.
Usually these children can develop following issues
1. Bloody vomiting due to increased pressure in the abdominal blood vessels and collateral formation
2. Low hemoglobin
(Anemia) or Thrombocytopenia
(low platelets) due to enlarged spleen
3. Splenic injury during contact sport or fall.
If it is extra hepatic portal venous obstruction, your child needs regular Endoscopy
and follow up with pediatric gastroenterologist. If any massive bleed is there, it needs to be addressed immediately.
on the long term, surgery like shunts (splenic renal) can be done to reduce the pressure in the abdominal blood vessels.
is indicated. Management based on the symptoms and it varies with individuals. I would suggest you to follow up with a pediatric gastroenterologist for further care.
Hope I have answered your query. Let me know if I can assist you further.
Dr. Nirubhan Bharathy, Pediatrician