My sister was diagnosed with pseudotumor cerebri. She is 17 years old, and she is experiencing many issues. We are having trouble distinguishing her symptoms from the side effects of the medication (1,500mg of Diamox). My sister experiences temporary vision loss, short term memory loss, dizziness, recurring ganglion cysts, and chronic back pain. Any information you can provide me with is greatly appreciated. On a side note, we are currently waiting to hear back from John Hopkins and another research hospital in Canada, to see who can give her the earliest appointment. If anyone is familiar with any hospital (location doesn t matter, we are willing to travel) that specializes in pseudotumor cerebri, I m all ears!