I have at least four benign osteomas on my skull, one about a half dollar size. Many polyps were also discovered during a routine colonoscopy, enough that it took two colonoscopies and a resection to remove the polyps. At least one was becoming cancerous. I have had cysts and rectal bleeding for years. I am currently 52. I have been referred to a neurologist and have been told to get a colonoscopy soon. I know that this is a rare disease, but other than the jaw thing and, as far as I know the family history, my background seems to fit this much closer than I would like. What do you know about this and what do you see here?