Hi welcome to HCM
I have gone through your query and can understand your concern for your son's problem
Porphyrias are a group of rare disorders passed down through families. An important part of
hemoglobin, called heme, is not made properly. Heme is also found in myoglobin, a protein found in certain muscles.
Causes
Normally, the body makes heme in a multi-step process. Porphyrins are made during several steps of this process. Patients with porphyria are lacking certain enzymes needed for this process. This causes abnormal amounts of porphyrins or related chemicals to build up in the body.
Attacks can occur suddenly. They often start
with severe abdominal pain followed by vomiting and
constipation.
Being out in the sun can cause pain, sensations of heat, blistering, and skin redness and swelling. Blisters heal slowly, often with scarring or skin color changes. The scarring may be disfiguring. Urine may turn red or brown after an attack.
Muscle pain anywhere in the body is common synptem .
Dear,Whatever the name of the disease be ,the reason behind is ourweak immune system due to ourfaulty food habits and our derailed life style.
I would like to suggest you to take care of your total health to strengthen your immune system by modifying your life style and food habits .
Regular exercise specially ,walk ,yoga Kapalbhatti , Agnisaar , Pranayam deep breething and
Meditation , to strengthen your immune system .
Include essential nutrients in your diet --FIBER RICH , DIET , citrus fruit ,green veges ginger , garlic to balance Air factor-- Vayu Dosh -- in our body ,
vitamins and minerals in natural form -, coconut water , , nuts , almonds , and supplements full of antioxidants as Aloe vera juice + Amla juice 2 spoons , Lemon juice with water and a pinch of salt and black pepper gives immidiate relief . Fish oil and flax seeds for Omega 3 and
Turmeric powder + Almond oil or olive oil at bed time is very important for our sound mental and physical health and strengthen immune response naturally . and include Lot of water in your regimen .
For detoxifying your system ,Do Ayurvedic kunjal -- drink 3-4 glasses of warm ,salty water - Retain for 1 minute - shake your tummy in & out 10 times - and vomit or force vomit whole water . Relaxe . Repeat every morning for a week .
Drink warm water aglass or two with lemon juice and salt & pepper in the morning after Kunjal .
Form habit of regular bowl movement sit for some time .
Too much of laxatives harm intestines and do long term damage .So avoid Use home remedied as honey with warm water and lemon juice , shake well and drink half an hour befor BF .
Take
Homeopathic Sulpher 30 / in Morning / 2 drops / & Nux Vom in the Evening a day for 2-3 days. Repeat if required .
It is important to Consult your doctor for further advice .
Hope this helps solves your query .Take care .All the best .Get well soon
Don't hesitate to get back if have any further query .