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Dr. Andrew Rynne

Family Physician

Exp 50 years

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My daughter is 2 years old her birthday is July

My daughter is 2 years old her birthday is July 19, 2016. In June of this year she woke up sick one morning and threw up 10 times in total. Around 5 that day she had her first seizure ever, and it lasted for 15 minutes. She never came back to normal afterwards, and once the ambulance got to my house ( i live about 10-15 minutes from the hospital) she had 6 more small seizures on the way to the hospital. She was dehydrated and her potassium levels were low. And she never really had a fever. She was admitted into Roanoke Carilion Hospital. We was there for a week, and they did an EEG, which was negative, and a spinal tap, which was also negative. The ended up just saying it was a GI Virus and sending us home. So, in the beginning of October of this year, I thought my daughter had Hand, Foot and Mouth, because her cousins had it and she was around them. She had a low grade fever for two days, and on the third day it spiked to 102. Between those days she started jumping and twitching in her sleep, and it was a constant thing with maybe a minute to two minutes in between them. On the third day when her fever spiked, I gave her a bath and that was her first time throwing up. Around 10 that night I decided to take her to the hospital, here in Martinsville, VA. On the way there she had two small seizures. Martinsville hospital couldn`t find an answer, and they did not think it was Hand, Foot and Mouth. They sent us home and told us to follow up with her Pediatrician. Her pediatrician told us to take her back to Roanoke for her to be admitted. We took her back to Roanoke that day, and we were there for 5 days. She had a fever the entire time there, it went from the lowest 98 to 104 the entire time there, mostly stayed up high. She was still having the jumping episodes, and there were several times where she would jump so bad that she would sit straight up. There was even one time she jumped so hard she woke up screaming crying. They did an EEG again and it came back negative again. They observed the jumping episodes in her sleep and diagnosed that as Nocturnal Myoclonus, other than that they couldn`t give us any other explanation for what was causing all of this. Hopefully someone can give us any sort of ideas on what this could be, or suggestions on what this could be in case this happens again to her.
Fri, 2 Nov 2018
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