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Lumps in the groin area. Have neurofibromatosis. Feeling tired, bone pains. Any suggestions?

hi im a 25 yr old female im a mum of three, just over 2 yrs ago i noticed i had a few lumps in my groin , whitch over time grew worse, i went to my gp and he did nothing, as i have neurofibromatosis type1 he said they were neurofibromas whitch nothin could be done, i have been back and forth and been told the same each time, but they cause me lots of pain are uncomfortable and annoyin, wen i touch these lumps very gently, i can strongly smell poo but no one else can, i also get liquid feelings in my belly too which can be very warm but sometyms very cold , its been 2 years since iv suffered with these and the pains gettin worse, its drainin all my energy and im always tired, i get realy achey bones too! cud you tell me wot this maybe please? thank u x
Asked On : Tue, 26 Feb 2013
Answers:  1 Views:  48
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Orthopaedic Surgeon, Joint Replacement 's  Response
Feb 2014
Hi and welcome to HCM
As you are suffering from neurofibromatosis, lumps in the groin area seems to be neurofibroma . You may rerequire surgery to remove all or part of tumors that are compressing nearby tissues or damaging organs. Surgery may help relieve symptoms of all forms of neurofibromatosis.
I do hope that you have found something helpful and informative and I will be glad to answer any further query.
Take care.
Answered: Tue, 24 Sep 2013
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