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Dr. Andrew Rynne

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Exp 50 years

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Is there any way to stop this CHF leg edema ?

anyone who knows FIRSTHAND about CHF leg edema please reply(MD's preferred but all welcome)? Every few days, my leg turns red, swollen, itchy, outerskin turns patchy white, Skin flakes off, then blisters form, ontaining water which soon breaks, water oozes down my leg, blisters turn dull yellow, then dark red scabs form. Skin looks slashed gouged, Pain is cruel beyond belief. I take less than 1 ltr water daily. I take ACE-inhibitors, virtually no sodium. diuretics galore. Yet the skin on legs is forever, blistering, oozing, cracking, flaking. TELL ME: Does everyone with CHF get this? Cardiologist says only a new heart will end symptoms. I wrap my wounds in gauze, I dare not rub with soap -even water will sting like electricity. The water yellow oooze stain my pants legs too, my pain is surreal. For those who have CHF, is there no way to stop this from occurring? Please help. The tissues inside legs are tight and loaded with water. Legs are stiff painful upon walking and standing. EAch morning, fresh new blisters appear crack the skin. Help!!! per surgeons whom I ve consulted, the excess water within the tissue drives out the natural lipids from within the skin layers (oil water don t mix, remember?)leavingthe skin dry as oldleather, prone to split, crack, blister, ooze, bleed, etc. the paiin ofthe cut skins is so great, but not doctors will give opiates. I suspect that you don t have my symptoms since you have less of ?CHF than I do. I have a severely scarred heart with maybe 1/3 tissue mump force left to me. the emore dmaaged the heart - the more severe the CHF. No cures exists - management isn t working.
Tue, 15 Dec 2009
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I just have one comment, most of what you are being told is accurate but DONT DRINK MORE WATER certainly its a natural diuretic for people without CHF but it can be deadly to you.
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doctor1 MD

I suffer from severe edema, fluid in lungs and around heart impairing my respiration heart also. Can someone explain to me, when a victim undergoes diuresis by drugs or ultrafiltration, exactly HOW DOES the water trapped within the limbs, tissues, etc, which traversed the veins capillaries in the first place - since the diuretics remove water content from the bloodstream, then HOW DOES the edema throughout the body go away, even if temporarily? doesn t it need to re-enter the bloodstream where it came out from? and how long for this to happen?? I know the diuretics and ultrafiltration have not a DIRECT effect to drain water from fatty tissues in my thighs, etc. I have painful pitting edema, legs bursting with water pressure internally. I don t respond to diuretic drugs I will not enter hospital. I am uninsured, and have no one to take me in if I lose my finances. I am unemployed cannot quality for ANY govt $$$ since I have funds of my own. Kindly reveal to me. clcalifo- thanks for kind suggestions about water w/lemon added. I will try it. MDs told me that this will be a sickness to the death. No matter how much water I remove, my defective heart will daily make more edema. I fear I may never catch Up - hospitals in NYC will not lower prices for me - cost is $5000 per day!!! this would leave me bankrupt. My landlord will evict me 1-2-3 into the street for non-payment of rent. This isNYC. Hospitals will sue me in court to pay their bills. They have frozen my bank accts before. NO thanks~!!! I pray that Jesus will let me die peacefully at home from the CHF -as I can t live with this pain in my limbs anymore. It happened from a HUGE heart attack. It s an illness which lead to death ,anyway. At 57 - I am an invalid, walking is so painful, my legs cant bend at all,my breath is gasping. So Ipray beg jesus christ to heal me or TAKE me Please pray for me. Thanks sonofsta- tell me - a peprson with CHF like me or your brother - how does the end happen? does their heart stop, or lungs choke up? I wonder what to expect. for me- the diuretics NEVER DID work - From my right leg there flows a steady stream of cold water day night -it burst thru the skin and spills constantly.I wear incontinence pads to catch this drip. Were your brother father able to walk freely go in and out where they wished ? And how DID hospitals drain their fluids??? Thru drugs?? I wonder how they coped on a daily basis. There is NO CURE for this illness. It can only end in one way. Please pray for me - I want Jesus to take me soon rather than live as an invalid.

doctor1 MD

My. Dad will be 94 in 2 weeks. He was diagnosed with CHF in July 2012. He is on diuretics n Pradax, K, n BP pill. He has Gilbert s synd. so his bilirubin is always elevated . For past 6 months it hs been elevated . He is jaundiced. This has caused severe itching of body. During the nite he accidentally itched ,, his leg n has reoccuring. Blisters on left leg for 6 months. We have been to primary mid, dermatologist, and now he is getting leg wrapped by PT at a lymphadema clinic. The blisters healed after 3 weeks n we stopped wrapping n in 2 days blisters reoccur n we resume wrapping? We had them cultured 2 days ago as even PT is puzzled? Yes he has edema of both legs from CHF. He is very alert n with it mentally. If you can give any suggestions we would love it!

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