I am a mum of a son with RP. It is really difficult I know and I felt there was no information for me or anyone to help us come to terms with this. There is no generaly available treatment yet but there is huge amounts of research being done with promising areas of results . These are in area of implants and the use of stem cells. This disease progresses slowly in most cases so nothing should happen too quickly. There are other problems which occur i.e. cataracts are common. Just help your daughter to cope with whats happening and keep hoping for and supporting a breakthrough, remember she has time.
I am a third year medical student. I am sorry to say that little can be done. In case where retina gets detached, it can be attached back. You can also give good Vit A supply to your child. Best will be to get it operated.
I think the person who posts such kind of problems should also describe these as there are thousands of diseases and all look alike, what do other say on this? If I happen to come across of such conditions I may come back on post, for now no help....
Respected Sir, I am Zahir Khan 17 years old, from India.I am suffering from retinal pigmentosis disease. Sir, is this disease ic curable? Is any surgery possible to cure this disease? Plz. give me information related it.I shal be highly thankful to you.
hi i am 49 years and suffering from eye disease retinitis pigmentosa but it is still not very much aggreviated and now i am feeling ataxia and i took medicine omega3 fatty acid capsule of 1 daily for 10 days now the problem of ataxia is not under control . please advice me
hi, my sister under problem with retinitis pegmentosa in her eyes. with this eye problem she s marriage life is reached divorse. she is very upset and herts with her eye problem. she is stay in maharashtra. so i want can their solution or treatment on above problem in india to back SMILE on her life...
Is an eye transplant possible for a child who has retinopathy of prematurity, once the child is full grown and reached adulthood? My son, has a completely detattached retina in the right (so that eye is blind) and his vision in his left eye is in tact and he has 20/80 vision in that eye. He is turning 13 and has asked me this question and I wasn t sure.
last night I began to have aflash of light on my peripheral vision on the right side...very intermittent but when I closed my eyes to sleep there was nothing, Upon arising, I have had a few more do I need to call the eye doctor?
Hello doctor, My wife and I just had our first child on Wednesday 12/13/17, he’s only 4 days old. My wife was holding him on the couch and my son was looking at my wife in a way where I wanted To catch the moment by taking a photo with my iPhone...
My retiinologist said I have retinal scarring which often happens in older people. He said it is caused by the vitreous gel on the retina breaking loose leaving a little bit of the gel behind on the retina and causing blurriness when reading. I cannot seem to find anything on this subject on the internet. Are you familiar with this condition?
My 31/2 month pre-mature daughter was recently taken to the hospital due to bleeding around her brain from her retinal cord connected to her left eye. Specialist say that this may be the result of shaken baby syndrome. Though my wife and I are the only gardians of our child at all times. i have two questions. Is it possible that this could be the result another kind, type, or way of abuse? Or could she have had very little bleeding when born and time built all of now?
I went to the hospital thinking i had a heart attack they ran test and my heart showed up good,but i still hurting when i start getting tired right in my chest bone area,46,320 pounds,i have sleep apnea,i have die phertickalitic had my appendix removed and gallbladder,also my left and right eye retina detached,