I have had M.S. for almost 30 years. After this long, family just seems to ignore it. Sometimes I want to scream it out, but that would seem too in your face. I don't want them to feel sorry for me, I just want them to understand that it just doesn't go away.
I read your question carefully however you don't say anything about your disease course which can be different from one patient to the other. You don't say anything about your medication either. Generally speaking MS is managed by treatment for relapses with short courses of steroids and disease modifying therapy which traditionally has meant interferons or glatiramer acetate, while now there are many newer options like fingolimod, natalizumab etc. As for the family understanding there is no medicine for that, you could try to talk about it with them, take them with you when you go for check-ups so they can hear what your doctors have to say and realize what you go through. I hope to have been of help.
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How To Manage Multiple Sclerosis?
I read your question carefully however you don t say anything about your disease course which can be different from one patient to the other. You don t say anything about your medication either. Generally speaking MS is managed by treatment for relapses with short courses of steroids and disease modifying therapy which traditionally has meant interferons or glatiramer acetate, while now there are many newer options like fingolimod, natalizumab etc. As for the family understanding there is no medicine for that, you could try to talk about it with them, take them with you when you go for check-ups so they can hear what your doctors have to say and realize what you go through. I hope to have been of help.