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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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How can vascular Ehlers-Danlos syndrome be managed?

trandsermal 100 micro grams Watson band is all iv/ ever used i am w eds type vascular n hyper mobility these new ones dont help my pain they itch and fall off how if my dr, and pharmacy working together to tied the gel only patches whats dif between durasstic and who still makes gel patches bands.
Fri, 27 Jul 2018
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Internal Medicine Specialist 's  Response
Hello and Welcome to ‘Ask A Doctor’ service.
I have reviewed your query and here is my advice.

Sorry to hear about your health condition.
The treatment and management of vascular Ehlers-Danlos syndrome (EDS) aims to relieve signs and symptoms and prevent serious complications. For example, people with vascular EDS have tissue fragility that puts them at high risk for rupturing of arteries, muscles and internal organs. It is therefore important to seek immediate medical attention for any sudden, unexplained pain because emergency surgery may be needed. Periodic screening may be recommended to diagnose aneurysms or other problems that may not cause obvious symptoms. The risk of injury should be minimized by avoiding contact sports, heavy lifting, and weight training. Elective surgery is also discouraged.

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