I have been diagnosed with bone necrosis of the left jaw joint. Basically I have no ability to chew or open my mouth, brushing my teeth requires holding open with my fingers. It s extremely painful and I am losing my battle of hiding this condition from the people around me. I have been to several doctors and not one will help me because there is no cure. There are three surgeons in the US that treat this condition but it requires complete removal of jaw joints and lower jaw bone. Disfigurement and the lost of teeth is the future with the disease. The pain is so bad that I have to be on a pain patch but it does not touch the sharp and nauseous pain I have all the time. Who can I go to for help? I am fighting to not give up but I can t find anyone that will provide medical support while I prepare for the loss of my jaw. My family Dr provides the patch but I fear that this too will be another turn away because she can t just give me a patch without some type of treatment. I have seen dentists, oral surgeons, dental college here...not one has the medical field on replacing or repairing the jaw joints. I have 3 abcesses in the jaw bone at this time and one has broken through to leak infection into my mouth. This may be fixed by an endo Dr but he will not touch the other 2 abcesses, doesn t touch jaw bone disease. If you have any suggestions on where I can find help besides Europe, then please share. I can t be the only person with this disease and I can t believe that others have no doctor to turn to for medical care. We have great insurance but regardless of where I go, no doctor can provide the help needed to allow me some comfort for this horrible problem. History- car accident, shattered face. Broken jaws in 14 places and jaw joints were sheared upon impact. I had jaw bone surgery to repair breaks. Jaw joint surgery to remove worthless discs and remove broken bones out of the joints. 20 years later brain surgery to remove ex-large brain tumor. Numerous teeth shattered, lots of fake ones now. Sinus surgery to repair damage and gangrene infections that set in after accident. Was told that left sinuses will never drain to nose again unless I approved a hole placed in roof of mouth. Declined because I have no interest in blowing my nose through my mouth, now I just don t have a working nose on the left side. It is completely impossible to sneeze. Fun stuff. So at this point I am clueless on what options are available. No one wants a patient with a disease that has no cure. I will be on some kind of medicine for life. If I could get help with this, I would be able to have a somewhat normal existence until a dr who specializes in this particular problem is found. My problem is where are these doctors that help the facial bones? I can find a knee Dr all day long, but anything above the neck that isn t the brain...good luck on finding anyone. Thanks for your attention and help. I will look forward to seeing what you suggest and hope that you have been down this road with another patient.