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Dr. Andrew Rynne

Family Physician

Exp 50 years

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How can acute retroperitoneal fibrosis pain be treated?

I have had RetroPeritoneal Fibrosis for five years. I am currently under four specialists...have tried absolutely everything from steroids (several) to exercising with a pro personal trainer, to being on Imuran for one year...nothing works. The pain is, on same days, literally unbearable. I am on morphine, fast relief and long-term. I am on the verge of giving up. Can you suggest ANYTHING ? Thank you.
Thu, 12 Jul 2018
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Nephrologist 's  Response
Hello and Welcome to ‘Ask A Doctor’ service.
I have reviewed your query and here is my advice.

Sorry that you have such unbearable pain. Never give up and you have many options in this modern medicine. You said that you used many drugs. Have you used Mycophenolate? Was Rituximab tried for your disease?Rather than Morphine, I hope, NSAID group of drugs will reduce the pain better in your case.

Hope I have answered your query. Let me know if I can assist you further.
Regards,
Dr. Susmitha Chandragiri
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