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History of kidney removal. Taking Phos-lo, Sensipar, Prilosec. Have itching due to PKD. Help

Hello I had/have PKD and had both kidneys removed about 8 yrs ago. Both were over 13lbs & had to be removed
My nephro only has me on Phos-lo, sensipar and Prilosec. I also get epo and iron injections but hemocrit is always way below acceptable and red blood cell are also very low. Itching is driving me nuts, he says its phosphorous but it is in range. I suggested testosterone he laughed at me and asked why I wanted erections? I have read it is better than epo? Can you help? what do you think?
Asked On : Mon, 14 Oct 2013
Answers:  1 Views:  24
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Urologist 's  Response
As you said you are CKD stage 4 and you are not yet diaysis dependent. Itching is one of the symptom of CKD. It is called renal itch or uremic pruritis. Mechanism of renal itch is still not yet understood properly and hence treatment of this has been less than satisfactory. Various drugs are used with some benifit like naltrexone, ondancetron, oral acivated charcoal or ultraviolet-B irradiation. Dont take these drugs without nephrologists consultation.
EPO and iron injections are best for your Haemoglobin. Testosterone is not useful. Consult your nephrologist again.
Answered: Mon, 14 Oct 2013
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