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Dr. Andrew Rynne

Family Physician

Exp 50 years

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Hello. My name is Tanya and I have ehlers-danlos hypermobility.

Hello. My name is Tanya and I have ehlers-danlos hypermobility. I suspect I have neck instability and my family doctor told me that a referral to my local neurologist would do no good because he was not Eds knowledgeable....what type of doctor should I see for CCI/AAI?
Sun, 28 Oct 2018
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doctor1 MD

I recently got diagnosed with Ehlers Danlis Syndrome Hypermobility Type III by Prof Rodney Graham (who is the top EDS Dr). He went through my family history & highlighted that my 17yrs old niece has EDS too (she s had 3 slipped discs in her back since she was 15yrs old, Siatica & Cyclic Vomiting Syndrome). He said ALL her symptoms were probably due to EDS & that the CVS was actually something else (that EDS causes, but I cannot remember what he called it). So my question is: What does EDS cause that has symptoms similar to CVS (she vomits for 12hrs straight, if she gets stressed, is tired or has anxiety)?? I can t remember the science name ?? She is seeing her GP Friday for referal to an EDS Specialist, but I wanted to know this information so the GP doesn t fob her off AGAIN!! Many thanks in advance. Xxx

doctor1 MD

XXXXX I have been diagnosed with Ehlers-Danlos hypermobility type (at age 64). My major features fall within this class. I also have some vascular (blow blood vessels in palms of hands and soles of feet, no philtrim, thin upper lip, thin velvety skin, high palate and very small blood vessels in the medulla oblongata. Don t have other bleeding issues. (Need a 22 butterfly for blood draws and IV s). My genetist glossed over stroke risk. I am guessing it is significantly increased - if so, any idea how much?. ( I have limited info on biological family.) email:

doctor1 MD

my daughter has hypermobility syndrome, when she recently had an op to remove ear wax the surgeon asked if she had ehlers danlos, this is something that has never been mentioned before. She also has severe global delay or unknown cause, could it be linked to ehlers danlos? she is 5 3/4, 100cm and weighs 15kg.

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