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Have BRBNS since birth. Any new treatment or research on this?

hello I am 51 yrs old and have had BRBNS since birth. I was treated at UTsouthwestern for 3-5 yrs. But I havent had any new treatment or information about new treatments or changes about research. I also have a ilostomy (since 3) . I m considering looking for a new medical center as it seems UT is no longer interested. Are there any web sites just about new research?
Asked On : Wed, 13 Mar 2013
Answers:  1 Views:  23
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Diseases and Conditions
Dermatologist 's  Response
Dec 2013
Welcome and thanks for posting your query on HCM.
As per you have Blue rubber bleb nevus syndrome since birth. I can really understand for the concern for the congenital disorder with mutiple problems of venous malformations of the skin, soft tissues, and gastrointestinal tract.
There are mutiple web sites which can give you authentic latest informations but best amongst them are "Research Gate" and "Pubmed".
You can visit these web sites at regular internal and search for the newer modalities of treatment. These are totally unpaid sites so you need not to pay any money for the same.
Hope these informations are helpful.
Wish you good health,
Dr Sanjay Kumar Kanodia
(MD- Dermatology & STD)
Answered: Sat, 27 Jul 2013
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