as per yr details u under proper physician and group of doctors..its advisable that have full confidence in yr doctors..
just to inform u that retinitis pigmentosa
is a rare, genetic disorder but disease for which cure is not available till date we scientist r working on it and some good news about treatment modalities have come up but still not available for commercial use for general public.recently it was in news in times of india .there is discovery / a ray of hope since the we r able to grow stem cells /cells of retina
i.e the cells which can later replace the defective cells , and also there is also gene therapy
i.e to change the defective genes which is responsible for this condition..but for the treatment for practical application and to bring it for public..will take some time..
so its my advice to get all the family members screened for the condition, get the genetic typing of the chromosomes..so that the exact defect and which genes r defective can be studied..go for genetic councilling by microbiologist, before and after marriage so that the couple should not have the same disease in any form, and since x linked character in this disease..family can avoid male child in which the expression of this disese would be more severe..
thanks to a science called genetic engineering
..but lots of more work has to be done..
occupational and physiotherapy
whn the child grows up.