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Child has grand mal seizures since birth, stops breathing, jerks, turns blue, taking gardenal, lacoset, lobazam, no relief

Hi.i'm 1yr 3mnt baby boy is suffering from grand mal seizures by birth onwards,he suddenly stifs his body,stops breathing,turn blue & jerks(for 20 to 30 Seconds)its like so many hurry canes comming in his happens 5 to 8 times a day,infact he physically not developing(he cant see,cant hear,& still his Neck did not controlled he is like 2months baby now,not rolling yet) i have consult so many neurologist's but there medicenes did not help my child,now he was on GARDENAL 30mg(tab),LACOSET-5 & LOBAZAM(giving from 1month) but it is also not working.please sir help me...every day i'm suffering from this.need your help as soon as possible..
Asked On : Thu, 11 Apr 2013
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Psychiatrist 's  Response
Dec 2014
Welcome to HCM

Sudden onset stiffness of body, jerky movements, difficulty in breathing, cyanosis in a child are definitely grand mal seizures. He is on Gardenal, Clobazam and Locasamide. But on medicines even he is having seizures, he is currently having 4-5 episodes per day. This means that the medicines are not controlling the seizures. I would like to advise you to please visit a good Doctor for proper evaluation and addition of new medicines if any in his prescription. Medicines like Sodium Valporate though not usually prescribed in children, but they control seizures effectively. Second thing I advise you to get his EEG and MRI done. MRI can find any structural lesion in him. Take him to doctor ASAP because repeated seizures will cause brain damage in him and he may not achieve mental ability fully in future.

Dr. Seikhoo Bishnoi, MD
Answered: Fri, 12 Apr 2013
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