Hi there ~
I understand your concerns. I am sorry that your child was diagnosed with cole carpenter syndrome and there may be no real cure for the condition. The delayed milestones may be due to that reason. I also hope that you get him the right therapy in terms of visits with pediatricians to assess growth and development and obviously physiotherapy
to get the maximum out of what she can achieve to be able to live independently in the future. I hope a visit with a pediatric orthopedic doctor would help in treatment. I wish you all the very best.
Take care and have a lovely day!