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Charcot-Marie-Tooth disease, weight loss, hand and feet muscle deterioration, unable to walk. Suggestions?

I am 70 years old I have lost about 50 pounds in weight which I needed I have a disease named Charct-Marie-Tooth Disease (3 German Drs Names) it is muscle deterrozation in feet and hands I use a walker to get around and give balance I since losing weight I have loose skin I can bend over to dry feet and toes and can see loose skin from my body Unable to walk for holds that excercise back but am strong in my chest and arms would appreciate some tips and advice in correcting my problem
Asked On : Tue, 2 Apr 2013
Answers:  1 Views:  53
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Orthopaedic Surgeon, Joint Replacement 's  Response
Jul 2013
Hi, thanks for writing to HCM.
The disease you are having is a rare inherited neurological disorder, also known as peroneal muscular atrophy.
There's no cure for your disease. But, the disease generally progresses slowly and the expected length of life isn't shortened by the disorder.
Generally severe pain can be controlled by taking analgesic medications.
Other forms of management includes
* Physical therapy - This helps strengthen and stretch your muscles to prevent muscle tightening and loss.
* Orthopedic supports -These help to maintain mobility and to prevent injury. Leg and ankle braces can provide stability during walking and climbing stairs. Wearing boots may provide additional ankle support.
* Surgery - If foot deformities are severe, corrective foot surgery may help alleviate pain and improve your ability to walk. But surgery can't improve weakness or loss of sensation.
Hope this helps

Answered: Mon, 8 Jul 2013
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