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Any Suggestion For Stickler Syndrome?
Hello! Mother of a son four years old which was diagnosed Stickler syndrome. Until a year ago he was led by Pierre Robin sequence, and then the doctor asked for the genetic analysis of the stickler ... They are still waiting for genetic analysis but the doctor is confident that it stickler, and the more I read the more convinced I am that ... She would like you to explain to me what the problems we encountered, cleft palate surgery, we passed the same as glaucoma surgery ... the things that should pay more attention to him and can olakasati some of the problems they will encounter ... thanks you in advance ... greetings from Croatian
Wed, 11 Jan 2017
Hi,
I had gone through your question and understand your concerns. Maintaining a healthy lifestyle by exercising and avoiding negative smoking by surrounding relatives can help prevent fractures.
Treatment may include care of broken bones, pain medication, physical therapy, braces or wheelchairs, and surgery. A type of surgery that puts metal rods through long bones may be done to strengthen them. Tentative evidence supports the use of medications of the bisphosphonate type. Please click THANK YOU and consider a 5 star rating with some positive feedback if the information was helpful.
Hope the above information helps you, Any further clarifications feel free to ask.
Regards,
Dr. Ahmed Aly Hassan
I had gone through your question and understand your concerns. Maintaining a healthy lifestyle by exercising and avoiding negative smoking by surrounding relatives can help prevent fractures.
Treatment may include care of broken bones, pain medication, physical therapy, braces or wheelchairs, and surgery. A type of surgery that puts metal rods through long bones may be done to strengthen them. Tentative evidence supports the use of medications of the bisphosphonate type. Please click THANK YOU and consider a 5 star rating with some positive feedback if the information was helpful.
Hope the above information helps you, Any further clarifications feel free to ask.
Regards,
Dr. Ahmed Aly Hassan
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