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Where Should I Go For Research On Neurofibromatosis?

Posted on Wed, 17 Apr 2013

Question: I have a grand daughter with Neurofibromatosis. I Iive in North East XXXXXXX and was wondering if there is any group of support or organisation in this area that I could become involved with, perhaps in a fundraising way to help with research into this condition.

Answered by Dr. E Venkata Ramana (40 minutes later)

Hi,

Thank you for your query on Healthcare Magic.

There are two support groups :

1.Genetic Support Network of XXXXXXX (GSNV):

Royal Children's Hospital
Flemington Road
Parkville, VIC 3052
P (03) 8341 6315
E YYYY@YYYY

2. NF Australia:

Suite 2, Level 1
84 XXXXXXX Road
DRUMMOYNE
NSW 2047
Ms XXXXXXX Zammit
T 02 9719 3356
YYYY@YYYY

Hope this information will help you to involve with the support groups in a fundraising way to help with research into Neurofibromatosis.

Hope I have answered your query.

Regards.

Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar

Follow up: Dr. E Venkata Ramana (15 hours later)

Thank you for your prompt reply to my request. I will follow up with these contacts. Regards XXXXXX

Answered by Dr. E Venkata Ramana (20 minutes later)

Hi XXXXXX

You are welcome,

And thank you very much for getting back.

I appreciate your interest to involve with the support groups in a fundraising way to help with research on Neurofibromatosis, which ultimately will help the humanity.

And I wish you and your grand daughter a great health.

And once again I thank you for contacting Healthcare Magic.

Regards.

Note: For detailed guidance on genetic screening consult a genetics specialist

Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar