What causes sudden loss of voice and dry cough when diagnosed with oral lichen planus?

I have problems in my mouth for the past year. I started off by losing my voice all of a sudden for a few seconds. Sometimes I would have the feeling of wanting to cough, but it was a different type of cough, like a dry cough. Then I started getting sores in my mouth. The sides of my tongue are very damaged. I have lesions all over inside my mouth and cheeks. When I brush my teeth, I bleed alot especially when I floss and brush my tongue. I develop lacy like white patches inside of my cheeks and when I remove them, I am in extreme pain. Then it starts bleeding alot. I struggle to eat. At the moment I only eat soft foods and avoid all spicy and acidic foods because they make my mouth burn and I feel like choking. Once in a while my nose bleeds all of a sudden. I struggle to spit as I feel like my mouth muscles are very week. At the moment the sores have reached the outside of my mouth on my lips. My tongue hurts when I move it alot. I was seeing an ENT specialist whoperformed a biopsy on me and ruled out mouth cancer. He said I had oral lichen planus and was giving me corticosteroids but they would only help me for a week or two and my symptoms keep getting worse. He referred my to a rheumatologist, but I am still waiting to be called for my first apointment. I have lost weight and I went to the ER once because I couldn't take the pain anymore. I was unable to drink water as it would also hurt me. I don't know what to do anymore. Please help me.