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What Causes Severe Headaches When Suffering From Rheumatoid Arthritis?

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Posted on Tue, 8 Apr 2014
Question: Hello. Can write more easily than speak so gravity of this might not be conveyed. I have rheumatoid arthritis (context) which has affected cervical spine - I know this from MRI (or cat scan?),yrs ago. End of oct in freak accident at Target had 6 pack of XXXXXXX v8 catapult from top shelf and slice my face open at bridge of nose such force nearly blacked out. Blood gush-eth. Went home eventually in taxi cleaned wound very well as I am on immunosuppressants for RA. Slept on & off for 3-4 days but kept waking up so figured I was ok. Wound finally healed. Then horrific headaches began radiating from bridge of nose where I was hit. I am a writer. Donning reading glasses sets off horrid headaches. Tried wrapping in cotton nothing helped. Then brain felt "foggy" weird. Seemed to get better except for periodic horrid headaches. Then very quickly downhill with multiple symptoms from horrid headaches to inability to think clearly or multi task short term memory severly affected then stopped mid sentence couldn't finish thought too exhausting then slowed speech, slurred speech!!! Went to ER diagnosed with post concussive syndrome told to rest brain which would be funny if not so sad. On deadline for major play now late cannot THINK cannot rest. Symptoms mount. When I get tired speech and thought process affected. But now scary NEW symptom - blurred vision double vision I have cataract in left eye from yrs of prednisone but right eye cataract removed more than year ago perfect result. Left eye suddenly got much much worse right eye compensates sometimes so I can see if I cover left eyes but right eye now having vision problems close left eye still have impaired vision. Vision issues scaring me whole thing scaring me nalso I cry all the time and "feel" crazy. Have not been in MI long so do not have eye doc to go see - the obvious response. Here one must wait often 6 wks to see specialist and must be referred. My doc out of town my head killing me pain pain pain pain wonder if cervicall spine was affected by impact of "hit". Very difficult to follow instructions follow thru please what should I do???? Phone problems so you may call & phone might not work in which case email please
doctor
Answered by Dr. Vinay Bhardwaj (10 hours later)
Brief Answer: Step By Step, Stay Calm Detailed Answer: Hi! My name is Vinay. Let me see if I can help you work through all of these issues and give you a plan of action that you can run with. First things first I would like to know if you have any other long term issues beyond the RA, Fibromyalgia and Hypermobility. I'd also appreciate it if you could give me a list of Medications you are on. That way I can make sure I'm not missing anything major over here. After going over what you've written a couple of times. I do believe that the first thing that should be ruled out is damage to the nasal passageways on the inside of the nose. When the V8 cans hit you on the bridge of your nose, the force would have translated down the bone that separates your nostrils (we have a fancy name for it called NASAL SEPTUM) That could have fractured the bone and driven bits of it into the soft tissues in the inside of your nose. The headaches and visual symptoms can be explained by that. Now How do you deal with that. The absolute best person who can see if there is any damage in that region is an ENT (Ear, NOSE and Throat) doctor. They can use a flexible scope and eyeball the inside of the nose and bridge and see if there is anything in there that is irritating the nerves in that region causing your headaches and visual symptoms. As to the fogginess, slurred speech and fog.. yes I'd explain that with post concussive syndrome too. You got nailed at a very sensitive part of the face which has very little protecting the anterior lobes of the brain. I'm actually grateful that you don't have worse problems. If these symptoms persist, you need to get to your neurologist and have them evaluate you. The knock to the face COULD have affected your neck. But since the headaches are emanating from the bridge of the nose, i am a bit skeptical. So. In my opinion. First manage your pain with whatever pain killers work best for you. I like using Ibuprofen (Advil or Generic), but in your case I would want to make sure that your kidneys are healthy before you bought that over the counter. Acetaminophen (Tyelonol or Generic) is also OK but you have to make sure your liver is healthy there. Then get to your Primary and see if (s)he agrees with me. Get yourself referred to an ENT and get them to evaluate you physically. They may look inside your nose and ask for a CT scan. DO IT. That's the best test to rule out any problems in that part of the face. If the ENT visit doesn't pan out, then the Opthalmologist is your next logical visit. Given how long it takes to make appointments and all. Might be a good idea to get BOTH referrals at once and get to the ENT first. So, to sum up. I think you need to have that injury looked at closer. I fear there may be a fracture or an internal injury in your nose that is causing most of your issues. If the ENT clears you, your next port of call is the Opthalmologist. I hope this helps. I really hope you get better. The world needs more writers. Take care and feel free to follow up with me whenever you want. Thanks for coming to HealthCareMagic.com
Above answer was peer-reviewed by : Dr. Vinay Bhardwaj
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Follow up: Dr. Vinay Bhardwaj (1 hour later)
thanks for concise anc clear response. I hads an x ray done of my nose to see if it as broken and was told it was not, but I do not know if the x ray looked as nasal passages or anything else you brought up. i had a brain x ray when I went to emergency room, brain looked "normal". I mention cervical spine because I also get horrible pain emminating from there -- and know I have damage to cervical spine as is fairly common in those with severe, long term RA. I was diagnosed at 28 while dancing in a show on Broadway. Talk about a life changer. Meaning I have had "diagnosed" RA for 33 years. I have had diagnosed fibro for perhaps 4 years and and "diagnosed hyper mobility" for just 6 months or so (though it's clear to me now knowing symptoms I've had it all my life - would kick myslef in the butt while running) had constantly sprained ankles and ran fevers for no reason. would get put in hospital, no one could figure it out and get released again. I am grateful that I was able to start over and became a successful novelist, playwright, etc. the cervical spine generated "headaches" which are dufferent sometimes seem to all morph into one, but perhaps it is just having a fibro or RA cervical spine flare at same time as facial bridge of nose headache. i cannot express how much it hurts. your pain med suggestions are -- please do not be insulted -- hilarious. I already have a scri for up to 3 7.5 hydrocodone a day. I typically never took moe than one -- two during a really bad day. Now three (and I dont mean all at once) doesn't touch it. Two at once -- which I'm sure I shouldn't do -- bsrely touches it. And the stress -- I feel awash in overwhelming stress and anxiety -- I am prescribed up to two cyclobenzaprine (do I have the right drug? for anxiety) and previously took one a day. Now as soon as onw wears off if I don't take another I shake - literally - and cry and it's the word feeling in the world. Additional meds: prednisone: currently 15 mg a day (oh the guilt that I cannot lower this during this crisis - I have been down as low as 3 and WILL get down again but how can i do it in the m idst of all this??? Adderall up to 2 a day but usually only one in the morning because there are days that without this i would not have enough energy to get out of bed and LIVE -- and I am a single mother. Not making a living is not an option. But how can I work now? I would qualify for disability (though it takes FOREVER to get but because i get residuals and royalties from past writing projects this evidently renders me ineligable. but i can't see or think well rnough to write. i guess i'm out of neurologist territory except for the huor of you saying "relax or some such" when I'm about to be thrown out of my apartment and cannot finish my play ergo cannot get paid for it. Okay, other meds: folic acid, methotrexate, and biolic whose name concussion is keeping from me but it's injected monthly, and i went on it following years on enbrel, until it stopped working. Multi vitamin. Oh and a drug whose name also escapes me but as I had a positive TB test (but no I don't have TB) had to go on this drug if I was going on biologics. I think I must be about done with it now. Cymbalta - which does seem to help some of the back ain from fibro. There you have my med litany. i am also currently on y second round of antibiotics due to infection in toe but it appears to finally be getting better. my blood pressure is notmal, heart normal, weight noraml, everything else: normal. please forgive horrendous typos. i can't see.
doctor
Answered by Dr. Vinay Bhardwaj (39 minutes later)
Brief Answer: Hmm, lets try and separate out these issues Detailed Answer: 33 years of RA will do a number on anyone and you seem to have coped BETTER than most of the patients I have seen with that disease for THAT long. I have gone through all your medications and there don't seem to be any XXXXXXX cross reactions to worry about there. So thats good. The Stress and Anxiety seem to be accentuating alot of you existing symptoms. Thats an area which we might be able to get a foothold and at least control your symptoms a bit. Now Cyclobenzaprine is a muscle relaxant that was probably given for your neck issues. I've never seen it used for anxiety. So maybe they put you on something like Xanax (Generic Alprozalam)? If your stress and Anxiety are not being managed with Medications alone. Maybe it's time for you to speak to a therapist... now I AM NOT saying you are crazy or anything like that, but therapists are very good at helping people manage stress and anxiety and they can teach you a number of relaxation methods that may be useful for you through the day. I'm still not convinced from the x-ray and the brain scan that the nose has been properly evaluated. You can scan someone from head to toe (we used to call it shake and bake in residency) and still miss things. I would still strongly encourage you to get that injury checked out by an ENT. Also, i understand the need for your high prednisone doses, and I am glad you are aware that they need to be tapered when possible. Being the nosy neurologist that I am, I need to ask.. Did your doctor ever try Lyrica (generic: Pregabalin) for the fibromyalgia symptoms? I have used IT and Cymbalata (though never in a patient with RA) and I've actually seen better results with the Lyrica. Now I'm not telling you to stop the cymbalata. It's a great drug. I just wanted to find out what went on that day when the Cymbalata was started. Lastly. Cervicogenic pain is one of the most difficult conditions to treat and I HAVE NEVER found a drug that works well enough on it. On the other hand simple physical therapy and exercises have helped my patients alot! Sometime more than the medications and pain meds. Now in your case I don't think simple exercise will control this pain. But there is a type of physical therapy that I have found to help in almost all of my patients. There's a YouTube link that I give to my patients that explains the exercise perfectly and It shouldn't take more than 5 minutes of your time. https://www.youtube.com/watch?v=Wa6XjHtKhoQ That's the link. Check it out. If you like the idea behind that excercise, talk to your doctor and see if you can do this for yourself as well. I DON'T want you starting ANY exercise regime until you have spoken to your doctor and cleared it with them. I have no ability to examine you physically and it would be reprehensible if i recommended a specific therapy without doing something that basic exam. If the youtube link doesn't work head to youtube and type in "Cervicogenic Headache Treatment" and click on the video by EHPhysio. The physical therapist is XXXXXXX Hunter and the video was published April 2013. I hope this helps. And I do so hope I didn't forget to address anything in your last question. Lemme know how else I can help you. Take Care.
Above answer was peer-reviewed by : Dr. Vinay Bhardwaj
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Dr. Vinay Bhardwaj

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Practicing since :2006

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What Causes Severe Headaches When Suffering From Rheumatoid Arthritis?

Brief Answer: Step By Step, Stay Calm Detailed Answer: Hi! My name is Vinay. Let me see if I can help you work through all of these issues and give you a plan of action that you can run with. First things first I would like to know if you have any other long term issues beyond the RA, Fibromyalgia and Hypermobility. I'd also appreciate it if you could give me a list of Medications you are on. That way I can make sure I'm not missing anything major over here. After going over what you've written a couple of times. I do believe that the first thing that should be ruled out is damage to the nasal passageways on the inside of the nose. When the V8 cans hit you on the bridge of your nose, the force would have translated down the bone that separates your nostrils (we have a fancy name for it called NASAL SEPTUM) That could have fractured the bone and driven bits of it into the soft tissues in the inside of your nose. The headaches and visual symptoms can be explained by that. Now How do you deal with that. The absolute best person who can see if there is any damage in that region is an ENT (Ear, NOSE and Throat) doctor. They can use a flexible scope and eyeball the inside of the nose and bridge and see if there is anything in there that is irritating the nerves in that region causing your headaches and visual symptoms. As to the fogginess, slurred speech and fog.. yes I'd explain that with post concussive syndrome too. You got nailed at a very sensitive part of the face which has very little protecting the anterior lobes of the brain. I'm actually grateful that you don't have worse problems. If these symptoms persist, you need to get to your neurologist and have them evaluate you. The knock to the face COULD have affected your neck. But since the headaches are emanating from the bridge of the nose, i am a bit skeptical. So. In my opinion. First manage your pain with whatever pain killers work best for you. I like using Ibuprofen (Advil or Generic), but in your case I would want to make sure that your kidneys are healthy before you bought that over the counter. Acetaminophen (Tyelonol or Generic) is also OK but you have to make sure your liver is healthy there. Then get to your Primary and see if (s)he agrees with me. Get yourself referred to an ENT and get them to evaluate you physically. They may look inside your nose and ask for a CT scan. DO IT. That's the best test to rule out any problems in that part of the face. If the ENT visit doesn't pan out, then the Opthalmologist is your next logical visit. Given how long it takes to make appointments and all. Might be a good idea to get BOTH referrals at once and get to the ENT first. So, to sum up. I think you need to have that injury looked at closer. I fear there may be a fracture or an internal injury in your nose that is causing most of your issues. If the ENT clears you, your next port of call is the Opthalmologist. I hope this helps. I really hope you get better. The world needs more writers. Take care and feel free to follow up with me whenever you want. Thanks for coming to HealthCareMagic.com