Question: This is a medical question regarding ROPE WORM parasites.

Many of us (myself, I am a RN) are struggling with our health and have come to understand via research and photos placed on the Internet that we are suffering from ROPE WORMS.
I discovered them as other people did by doing enemas in order to obtain relief from gastrointestinal symptoms. I have been doing a series of 3 enemas every morning for over 5 months now and I am still infested with parasites. I think that it is systemic.

It is said that these PARASITES are new. However, I have difficulty believing this. Is there anyone that can help us to find a specialist MD that might be knowledgeable about these ROPE WORMS. They are making us very sick with chronic conditions.

My Chronic Current Symptoms are:
Indigestion
Bloating
Constipation/IBS
Flatulence
Headaches
Chronic fatigue (Extreme fatigue)
Food sensitivities (I react to everything) I was never sensitive to food before.
Gluten allergy

All my symptoms get relief with enemas, but then return by the end of 24 hrs has the rope worms multiplied themselves.

NOTE:
I have always weight only between 90-96 lbs since I was 16 y.o I am now 50 y.o very petite. Currently weigh between 83-86 lbs du to the daily enemas and restricted diet, since I react negatively to many foods.

Below I am providing links to some information about Rope worms and also a detailed history of my current illness.

Medical Articles about ROPE WORMS:
Human anaerobic intestinal “rope” parasites
www.eng.usf.edu/YYYY/1301.0953.pdf

Development stages of the “rope” human intestinal parasite
www.eng.usf.edu/YYYY/1301.2845.pdf

Unofficial Questionnaire: ( It is an excellent source of information from patients )
http://www.curezone.org/YYYY/am.asp?i=0000

Graphic Photos:
http://ropeYYYY.com/
http://www.betterYYYY.com/ropeworms
http://www.markusZYYYY.com/enema/ropeparasite.html
http://www.cureYYYY.org/ig/i.asp?i=66514
http://www.goYYYY.com/1024/today%E2%80%99s-rope-worm-segment/http:||ropeYYYYcom|wp-content|uploads|2013|12|2013-11-23-06*46*52*jpg/


History of current illness:
January 2012----Hx of cruise to Mexico (I ate in 2 restaurants in Cozumel, Mexico)

Early 2012 -------Experienced the following symptoms:
Bloating, Constipation/IBS, Flatulence, H/A, Chronic fatigue (Extreme fatigue), Food sensitivities (I react to everything) and
Have been reacting severely to Gluten: h/a, extreme fatigue requiring that I sleep.

XXXXXXX 2012-------- Body shut down #1 (Bedridden d/t complete exhaustion & inability to digest food) I slept for 3 weeks and got up only for juicing (citrus: grapefruit/orange) for 3 wks.
Refused stool test d/t NO insurance
Requested Medication: PAROMYCIN (d/t hx: amoeba 10 yrs. ago w/ similar symptoms)
Result: NO improvement w/ PAROMYCIN


July12-May 13---Struggle w/ same symptoms
Attempted to manage symptoms w/ Gut-Restorative Diet & Natural Supplement Protocols
Result: NO success

May 2013 Laboratory: CMP: negative
Stool test: Positive: Bacterial overgrowth & Elevated lysozyme (ongoing colonic inflammation
Medications: METRONIDAZOLE 250 MG QID + TETRACYCLINE 50 MG QID X 10 days
Resulted in no improvement and developing Strep throat

Medications: CLARITHROMYCIN 500 MG BID + AMOXICILLIN 1G BID X 10 days
Result: Got worst by experiencing body shut down #2 by XXXXXXX

XXXXXXX 2013--------Body shut down #2 (Bedridden d/t complete exhaustion & inability to eat solid food)
I slept for 3 weeks and did juicing (citrus: grapefruit/orange) for 3 wks.

July 2013----------Laboratory:
Vit D low (Corrected by November-- took Vit D3 5000 mg daily x 3 months)
Struggle w/ same symptoms:
Attempted to manage symptoms w/ diet & natural protocols w/ NO success

October 2013---- I discovered that (L-Glutamine 22G per day) was needed to heal leaky gut syndrome
L-Glutamine 10 mg/day started
Result: My health improved in regard to my bathroom experience: (see below explanation)

Prior L-Glutamine---when experiencing a BM (diarrhea or Constipation) it felt like dying. After the BM, I would be totally pale & drained. Extremely weaken & sick looking.
It felt like I had been in a combat war & the exhaustion required sleep to regain limited energy.

Post L-Glutamine--- No longer felt drained or dying when experiencing a BM. No longer requiring sleep to recover from a BM. This gives me a lease on life.

Nov 2013---------Laboratory:
Vit D: Normal
CBC: Normal
CMP: Normal


December 2013----Spent couple days in Sarasota
Cheated from my restricted diet: Drank coffee, desert & did (once) gluten sandwich
Celebrate New Year: Nice dinner, wine, espresso coffee & desert
Result: Entire GI System become inflamed

XXXXXXX 1, 2014--------My GI system is inflamed from the back of my throat to my anus
Struggle always w/ same symptoms

1) Attempted to manage inflammation w/ Liquid diet:
•     Breakfast & Lunch: Smoothies (Water w/ Banana, Pineapple & Raw Meal w/cocoa)
•     Dinner: GREEN Juice

2) Supplements: (Oil Up, Replace Deficiency & Build Up Immune System)
Omega 3 fish oil
L-Glutamine 5g daily (am smoothie)
Colostrum
           Probiotics (Metagenics IBS Probiotics)
           Vitamins & Mineral Liquid (Swiss cal & Buried Treasure)
           L-Carnidine liquid (energy)
           Vit D3/B12/Iron w/ 3 caps Vit C

3) Supplements: (Destroy Biofilm))
Butyric
NAC
Sulfur MSM

Feb 2014------------Result: By the end of February my health had improved w/ liquid diet & supplements
But Improvement short lived d/t birthday March 5

Mar 5-9 2014------My birthday: I ate cake & coffee daily x 3 days
Result: Backsliding in progress over my symptoms & have not been able to recover since

Summary For 3rd Summer:
This is the 3rd summer struggling with the same symptoms; however, I did not have another body shut down. However, by attempting to add different kind of protein powder in my smoothies my health turned for the worst. I had severe H/A and lost total control over the management my symptoms: major diarrhea, bloated, abdominal pain d/t trapped gas.


Detailed History:
July 2014-----------Keep trying to improve symptoms with my diet: I believed that I needed add protein (amino acid)
July 5 -19: Started add Rice Protein powder in my smoothies every day
Then stopped d/t developed severe H/A
July 12-20: Problem w/ severe H/A
July 26: Started Pea Protein powder (top quality) in my smoothie

August 2014------Aug 4-7: Ate 7 total almond macrobiotic bar--then stop d/t increase of # diarrhea
Aug 5: Stopped Pea protein powder in my smoothies
Aug 21: Started (Vega All in One) powder in my smoothies     

My body is in a total wreck with d uncontrollable diarrhea
This is a miserable month

PARASITES CLEANSE & ENEMAS
Sept 2014---------Still miserable with diarrhea that is out of control & totally exhaustion
Stopped (Vega All in One)
Started Adrenal Support (Dr. Wilson’s program), but stopped before parasite cleanse

Sept 10: Coffee Enemas #1 in attempt to relieve from abdominal misery
Sept11-18: Coffee Enemas (feel so much better after enemas)

Sept 21: First time--Started Dr. Clark’s parasite cleanse for 18 days

Oct 2014----------Continues Dr. Clark’s parasite cleanse until 10/8/24
Oct 2: Started Dr. Clark’s Candida Cleanse until 10/15/14
Result: ****A lot of weird stuff (?) & candida (?) coming out

Nov 2014---------Nov 3-10: Started Mucoid Plaque Cleanse
Result: (worthless no mucoid plaque)

Nov 9: Second Round Started Dr. Hula Clark’s Candida & Parasites cleanse
W/ 3 series enemas daily: ACV/Coffee/Kefir

Dec 2014--------Dec 1-8: Continue Candida & Parasite cleansing until 12/8/14 w/ series of enemas: ACV/Coffee/Kefir
Dec 11: There is no difference about anything: my Gut still bloated & Parasite/Candida still
the same. I still get relief from the symptoms after the enemas, only for them to comeback in 24 hrs.
Dec 13: I took 3 TBS fish oil
Dec 14: I had so much (? Parasites/?candida) out that it looked like vermicelli

XXXXXXX 2015---------Typed on Google “stringy mucus” instead of candida or parasite &
Bingo, I found a community of folks that are sick as myself experiencing the exact symptoms and are expelling identical stuff in their enemas.

Thank you so much for your time,
XXXX

Dear Dr. XXXXXXX
Your possible diagnosis of denuded gut epithelium seems to be very plausible in my case. Since your response, I have examined what is coming out of my body after my enemas with the possibility that it could be as you indicated, a denuded gut epithelium. With this in mind, I would describe what is coming out of my body at different time as the following:

1)      Epithelium cell sheets (White flat sheets around 3 inch long) clear or white.
2)      Epithelium cells grouped together in small unit. (Yellow or white) Give the impression to be systemic.
3)      Epithelium cells clumped together in large chunks. (Especially, when consuming something irritating to the gut)
4)      Single strings of mucus - varies in length. (Transparent, white or brown with or without brown dots throughout)
5)      Multiple strings of mucus connected with each other (clear, white, yellow or brown with or without brown dots)
6)      Multiple strings of mucus twisted and fused together (Brown)

Since the possibility of your diagnosis of denuded gut epithelium, I am inclined to believe this is what I am passing rather than rope worms or candida. However, to answer your question regarding if a histology study was performed on any of my specimens—the answer is NO. I have not had health insurance to investigate further. However, as of March 1, 2015, I will have health insurance and will be in position to obtain the care I will need.

I am not knowledgeable about “denuded gut epithelium” since I have never encountered such diagnosis. Would it be possible to provide some answer to the following questions:

1) Is this a condition that has resolution?
2) Is this an auto-immune disease?
3) What are the possible causes?
4) Is there any predisposition factors?
5) Can it be prevented?
5) What is or are the treatment(s)?
5) If treatments exist—Will it require hospitalization?
6) What is the prognosis?

In my previous email, I forgot to mention that my GI Panel was positive for H. Pylori (Saliva).

My health insurance will become effective on March 1, 2015. I believe this insurance will allow me to go directly to a specialist MD without having to pass through a family practice provider. How do you think I should proceed with obtaining care?

I am so glad that I have found you Dr. XXXXXXX You are an answer to my prayers.

Best Regards,
XXXX

Dear Dr. XXXXXXX

Thank you so much to help me as your responses are helping me to learn, reflect and think things through more thoroughly regarding my condition.

Is the denuded gut epithelium could be due to the body attempting to heal an Ulcer(s)?

I am thinking of ulcers as I now am recalling something that I had completely forgot. In deed, all my health issues first started with two major episodes of gastric pain after eating dinner following stressful days. In fact, it felt like the food had exploded in my stomach. However, since these two major episodes, I only have experienced minimal gastric pain periodically. Yet, two weeks ago, I felt like a burn in my epigastric area that was so sever that the idea of ulcers did cross my mind.

I do have a history of Gastric and Duodenal Ulcers at the age 21 year old. At that time, the pain had been so intense that I collapsed in the hall of the hospital unable to move. I was transported to the emergency room. They performed barium studies, which turned out to be positive for ulcers.

Further, In the pass ten years, I have experienced tremendous amount of stress due to a car accident, that has produced hardships and many lost, that have not yet had time to grief over.

Your thoughts on the matter are appreciated.
Best regards,
XXXX

Greetings Dr. XXXXXXX

I am reporting before our discussion closes automatically. I am working through the transition.

February 17, 2015:
NO Enema (Stopped from 5 months of daily enemas) Diet: Unchanged (Fresh Coconut Smoothies w/blueberries) X2

February 18, 2015:
NO Enema Diet: Low residue diet+took probiotics, anti-spasmodics & anti-flatulent and PPI

February 19, 2015: NO Enema Diet: Low residue diet+took probiotics, anti- spamodics & anti-flatulent and PPI.

On February 17,
I did not realizing that coconut was considered a major fiber food. I usually do a fresh coconut smoothie with blueberry and (raw meal sprouted powder) plus (L-glutamine & multi-minerals) every morning. Unfortunately, because of lack of time on that day, I made myself twice a Coconut Smoothies on the same day. That was a big mistake as I became so bloated like 6 months pregnant. I felt so miserable from the pressure in my gut. I started to pass gas in the evening. There was no BM.

On February 18,
I still passed gas in the morning, but proceeded with your recommendations to stop the enemas and began your protocol. There was no BM. A lot of burping & belching. I was very distended still from the day before and wished that I could have a BM for some relief, but I was constipated. I felt tired and I cried from discouragement.

On February 19,
I still passed gas in the morning, and felt that I needed to go, but I was still constipated. I took a gentle laxative for relief that resulted in 5 stool totals, that were spread throughout the day. According to the Bristol Stool Chart: The BMs were consecutively as the following: BM type #2, BM type #3, BM type #4, BM type #6, BM type #5. I am still distended, however, I feel so much better that I have found relief. I am still burping & belching.

When I was doing the enemas, I found relief from many of the symptoms. No distention, No flatulence, No burping & No belching and No depression (My mind was clear and my outlook positive believing that I will somehow overcome and that this too shall pass).

Question?
I have already been on many medications for H. Pylori such as:
Metronidazole 250 mg qid + Tetracycline 50 mg qid x 10 days. Resulted in no improvement and worst, it weakened my immune system as I developed strep throat. Then I was prescribed: Clarithromycin 500 mg bid + Amoxicillin 1g bid x 10 days, also with no improvement. I felt worst then ever. Then I returned to my own device again by attempt to eradicate the infection with natural protocol, but to no avail.

In the US there is a new movement in the field of Functional Medicine— (This is a new approach to medicine). In fact, some medical schools are now starting to train their medical students in this approach in addition to the traditional western medicine. Many laboratories are springing up in the US as functional medicine laboratories. I am providing you with some links.

Different schools of Functional Medicine:
https://www.functionalmedicine.org/
http://academyoffunctionalmedicine.com/

Functional Medicine Laboratory: (DRG Laboratory)
http://www.drglab.com/GI_Pathogens_Plus.html

In my research, I have discovered that there was a new stool test for H. Pylori, that also indicate what strain of the H. Pylori as well as antibiotic resistance. (See http://www.drglab.com/GI_Pathogens_Plus.html )

The problem is that this movement is recent, and most likely the gastroenterologists in my city are unaware of these type of laboratories, because they are associated with functional medicine (alternative), which I embrace.

If you were in my circumstance would you seek a provided that is knowledgeable about this stool test of H. Pylori and should I seek to have my antibiotics administered as IV therapy this time?

Sincerely, I appreciate you,

Best,
XXXX

Thank you for your caring Dr. XXXXXXX

Yes, you are right! I have been lactose intolerant and intolerant to so many more food for the past three year. In deed, so many food that it has become impossible to overcome my symptoms, unless I don't eat at all.

As a French Canadian, who grew up with great food and great wine, as a way of life, life has truly become miserable. But I have hope now, since I have been in communication with you. So, after all maybe "This Too Shall Pass".

I am so grateful to you. Your insight on my case is sending me on the path of healing. I could not have had a better doctor. You were the perfect doctor for me.

Again thank you for everything,
God Bless you,
XXXX