Question: What should someone do if they suspect they could have ehlers danlos? For as long as I can remember i have had joint and muscle pain. They told me it was "growing pains." Everyone thought I played sports because I was tall and thin, but I was never any good and I got hurt all the time. I never really thought much about it until recently. I was diagnosed with POTS and had to get knee surgery for an osteochondral defect. They said I had a lot of wear on my tibia. So now I have to get a bone graft and a tibial osteotomy. My other knee is messed up too. They said I had patellar instability and subluxation. I also have problems with the discs in my neck and back and I have pain a lot. When I was at physical therapy the therapist asked me if I was ever checked for ehlers danlos because she noticed my movements and complaints. After researching there are a lot of things I found that were common in ED that I have. I have abdominal hernias, preterm labor, autonomic dysfunction/ POTS and as a child I would bruise very easily (in fact my mom said they had questioned her about abuse because of all my bruises). I was diagnosed with fibromyalgia but my doctors all say I dont fit the typical patient profile. My mom has MVP and bad scoliosis and syncope issues. From my understanding this could be part of it. Now my daughter has a few things I worry about. I just feel that I should get checked but not really sure where to start. What do you think?