Is There Any Disease Called CEO Disease?
This wasn't Parkinson or MS. I had never head of this disease, and of course it is a word that is impossible to pronounce! Only doctors and nurses know how! Doug's wife has moved away so I can't ask her. Do you have any idea what this condition is? By the way, it moves quickly----from the time of diagnosis to his death was only about 1.5-2.00 years, at least when the symptom of the disease became noticeable. Can you help me identify this disease? I want to know for my knowledge but also I think a friend my may have it. She is showing all the symptoms and her doctors can't identify it. they are giving her Valium to tolerate the constant, uncontrollable shaking. She is about 60 Yrs of age if that helps.
I hope so much that one of you can help me. Thanks in advance for our help and time. XXXXXXX XXXX
I read your question carefully and I understand your concern.
I must say that it is difficult to understand what the diagnosis of your late boss was. There is no recognized condition called CEO disease, it is a term which has used for some psychiatric issues, but certainly not ones which lead to death.
If I was to judge from your description I would say that it was most probably a movement disorder, the so called parkinsonian syndromes (having similarities to parkinson’s but with additional manifestations and not responding to parkinson’s treatment). There are several conditions in this group, among them the history of shaking and loss of balance raises the suspicion of a condition called multiple system atrophy, a condition which involves the cerebellum, extrapiramidal and autonomic pathways and would justify all those symptoms. The age fits as well. So that would be my most likely diagnosis.
Of course it is difficult to offer any certainty because this group of conditions doesn’t have a diagnostic imaging or lab test, the diagnosis is based on physical examination findings which is not are not available to me. These are the toughest conditions to deal with, which can be erroneously diagnosed even by the best of specialist, so it is advised to be seen by a movement disorder specialist.
I remain at your disposal for other questions.