Question: Dr. Narasi, I have an 18 year old grandson who has Menkes Disease. His ability to chew and swallow is declining and it was recommended by Doctors OHSU in XXXXXXX Oregon to place a feeding tube to supplement nutrition with Jevity. He had the tube (sewn in, due to possible breathing difficulties during local anestesia. He had this done last Wednesday. He was sent home with Miralax and Dioctyl Sodium. He is to take a packet of Miralax once a day and the other twice a day. He started on the stool softners Saturday night when it looked like he may be constipated. He has still not had a bowel movement. His mother has not started the feeding due to the soreness of his incision. He is taking food and liquid by mouth. She is giving the stool softners and water through the tube. We have been trying to reach the hospital all day (it is two hour drive). He doesn't have a specific doctor so a nurse is supposed to be calling but has not. We are very concerned and don't know if there is something we can do until they call. We don't know if we can start the feeding or if that is too much in his stomach. He gets 4 8oz. cans of jevity over a 10 hour period with a pump.