Having coagulation problem, near to get menopause, slightly anemic. What should i do?
They said the opposite of what I expected. I don't wish for VWD, I just wanted solid answers as to why I bleed like this and have varied symptoms. My results showed factor viii at 219!! My vwf was 176! factor xiii was 141! and RBC 3.51,HCT 30, MCH 24.2, MCHC 28.3. other stuff was normal range. The doctor said "your platelets are working fine, in fact too good XXXXXXX She never addressed what she saw on my results shows a flag for risk of VT etc...and mentions a risk for birth control pills. But she then suggested that when I saw my NEW obgyn, which was yesterday, to possibly think of BC pills to control the bleeding since she said my bleeding is all due to mechanical issues with the uterus and not VWD. (By the way, both biopsy and surgery tissues, two times showed pathology for uterine was benign). So in my research, I have found many sources telling me that factor 8 and vwf can be raised due to trauma, post surgery, emotional stress (I was a basket case in her office on Oct.1 when they drew my blood, crying etc... and have been very stressed even wtih family issues), and also in early July before the hemmoraghing, I was hit badly on the right leg with a ball very hard and it resulted in a contusion on my calf muscle that bruised the size of small football and bruised down to my ankle. It was horrible, and still is slightly bruised 3 months later. I feel that post two surgeries, stress, and trauma to my leg might have elevated my factors. So, the problem is this: I am also type O blood, which according to what I read has a lower incidence of these factors and to control my cyles, I am afraid to do BC pills if this test IS right, but is it? I asked the hemo doc if it is accurate and she assured me...but I am not so sure when all these factors come into play and she ignores my pleas. Also, I have not bled since mid Sept., and my new OBGYN is ordering a new ultrasound to be done at the tail end of the next cycle whenever it arrives. Until then, I am on 300 mg of iron daily for the next 3 months because after the infusions I have hemo at only 11, which is where I hovered at most of my life until I bleed. I do not want a hysterectomy if no cancer and I want to make sure I don't have VWD because if a hysterectomy is ever in the future, that is surgery and I seem to bleed after surgeries. I am not convinced about my results, are you? I am tired of docs who seem to downplay my knowledge and put me off when I say something they don't know. Please advise if I should demand a new vwF test in a few months when I am less stressed and more healed, or change doctors also. Also, if it comes back the same, what about BC pills to get me through to menopause? I don't think I am facing menopause for a while, but the cysts on my ovaries (2nd ultrsound showed one on right now), could cause issues. I don't want an ablation or IUD. Sorry for the long story, but I need someone with great knowledge here, not just a dance around doctor. Thank you for all your help.
Thanks for writing in to Healthcare Magic!
There are many people these days around, who believe they can out-smart the doctors by reading 40-50 pages from internet on an isolated topic.
In fact this unfortunate lot suffers more than the illiterate folks due to their apathy and poor concentration/compliance with the Doctor's orders.
Please stop this ideation, as a layman you can not out smart the poorest kind of doctor, let aside the doctors in your vicinity.
It was a real pain to read such a long document, full of pain, blood, rift, discord, lack of trust, suffering, wastage of time, effort and money.
It is a serious affair!
Come to your basic problem. Your hematologist is satisfied about yours coagulation profile so am I. Some persons may have excessive bruisability due to their constitutional make up, tests would so normal reports but bruisability and oozing is due to excessive capillary fragility which may be in turn due to weakness of the connective tissue make up.
Retesting the vWF is meaningless because even a level as low as 30% of normal will prevent oozing, so what will you get; I think you should coincide with your hematologist.
With this type of issues of bruisability and lurching dangers of bleeding from uterus anytime due to local lesions and poor endometrium (which I think is related to the poor collagen/elastin support; the constitutional issue with you) you are likely to suffer much morbidity in coming times.
My sincere advise would be to go for number one solution in such cases - the hysterectomy.
You have completed the family, you are nearing menopause but there are chances that the trouble would continue to bother you even then if uterus would remain.
Even a day spent in morbidity is a day lost from your life, why an educated person should suffer like that, while the solution is so promising, it is so safe and it can be done even vaginally without external scars and it does not affect your sexual life.
I just do not find a rationale, why should you bear an idea like "no hysterectomy" in such a scenario.
It is my friendly advise to you; bring an abrupt end to the misery, take a rational stand and live a peaceful, pain free and trouble free creative life in full harmony with All The Doctors.
When you start living a great life post- hysterectomy, please go to that doctor to pay thanks, who first advised you for Hysterectomy and sent you in a tizzy!
You can guess I want to be the last doctor to advise you a Hysterectomy.
God bless you.
If you have any further query please let me know I would try to answer it for you.
Wish you a great health!
Maybe you should re-read my story. Not one doctor has yet suggested, and I repeat, not once, for me to get a hysterectomy. I do not have cancer, and it is absoulutely untrue that ALL women do not suffer a lack in libidio due to hysterectomy and many also have their ovaries shrink to nothing in about two years if those are left. I prefer to do things naturally since I do not have cancer...which is the number one reason to do a hysterectomy. Other reasons to do one that are less of a reason, I can control without taking drastic measures such as a hysterectomy. It is very sad that you, a MAN don't have the compassion (such as you saying I have discord), to realize what it means to a woman to keep her female organs if possible and to enter menopause naturally. To say that my story was a waste of time, money, and painful for you to read shows you have no good bedside manner for a doctor and do not care about one's medical history and to see that knowing their history helps you make better decisions. You apparently did not read the part that my blood was drawn right after two surgeries and an injury which can raise factor Viii levels and Vwf levels. Also one can have a bleeding disorder such as that and have normal results. It IS important that I find out for sure so as to not find out during a serious surgery or accident, plus the disorder is genetic and I have children. How would you like it if I suggested to you without cancer, to have yourself castrated since you are not needing more children? Until you are a man in your next life, you need to find some compassion and not act like a doctor that does know EVERYTHING, because you indeed do not. Until my condition becomes life threatening, I will not seek to have a hysterectomy and until I have all answers. I was hoping to find more answers with you and a doctor who was open minded and listened to his patient, but that is not the case with you. I came on here for help, not for you to tell me that my story was painful to read and waste. Apparently this website is a ripoff because the last time I was on here, I asked specifically for someone in the OB field and got that with just $9.95 and no problems. THis time, it seems to be an issue. Now, why on earth would you think it is ok for me to talk to a pediatrician or anyone on your site think that is ok? This is an absolutely ridiculous website AND you talk about me reading things on the internet....well aren't you on the internet too? Who do you think you are? You are the same as all the doctors putting out all the info I am reading....ON THE INTERNET. You did no XXXXXXX me in person, you do not know enough about me to have judged me that way...you made me, a patient, feel like shit. Thank you for nothing. No go get yourself castrated because you will still have a libiio. Have a nice day.
Welcome back to Healthcare Magic Physician's Desk!
I had no intention to hurt you.
I do not understand how did you judged that I thought your document was a pain for me to read and you have misunderstood the content a waste of time, effort and money, I was actually referring your time, your money and your effort, just have a relook-
XXXXXXX a real pain to read such a long document, full of pain, blood, rift, discord, lack of trust, suffering, wastage of time, effort and money XXXXXXX
Anyway I hope you would be a big hearted lady and would forgive me for the flat and unpalatable content.
The major issue I want to impress is that our organs are to support our body system and should not drain the resources and consume the reserve and resilience of the system.
I have no hesitation in accepting that I would get Castrated if I had a problem in my testes and you were my doctor, telling me that I am getting more harm than benefit by keeping the testes there.
You should also know that in man the testes is physiologically as active as in young but unfortunately that is not the case in females.
The female uterus and ovaries become worn out organs by 50years.
If they are creating difficult to treat health problems then can easily be sacrificed without much effect on the woman.
In nutshell I wanted to impress upon you the need for an urgent management of your problem. If you do not agree with me then you should agree with your OB for the BC to control the bleeding, if that works that is welcome.
If not then try some thing else short of surgery.
If you continue to suffer then you can need frequent blood transfusions to build Hb, which can lead to transfusion related health problems.
You might catch genito-urinary infection, which can be a challenge to control.
You may get depleted of body resources due to constant loss from bleeding.
I know you have labelled me a vindictive man who should be Castrated but trust me I had no intention to irate you.
I hope you would appreciate me for my timely advise and options later on like my other patients who initially reacted heavily but today they are my fans.
Wish you a great health!
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