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Are there any new treatments for myocitis?

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Posted on Fri, 8 Nov 2013
Question: are there any new treatments for myocitis, and how do I find a support group in central Pa.
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Answered by Dr. Preeti Parakh (14 hours later)
Brief Answer:
Support group information given below.

Detailed Answer:
Hi,

Welcome to Healthcare Magic!

Myositis simply a general term for the inflammation of muscles. It is many types and the treatment depends on the type of myositis. Since you have this for a long time, I think you must be having one of the autoimmune types of myositis, like polymyositis or dermatomyositis. Often these are misdiagnosed as autoimmune myopathies have many of the same symptoms as those with inclusion body myositis, toxic myopathy, or muscular dystrophies, which are inherited forms of muscle disease.

As of now, there is no cure for myositis. However, proper management of the disease is critical in order to reduce inflammation caused by myositis and to prevent muscle weakness from progressing. There are two approaches to treatment for myositis:medical treatment and lifestyle management changes.

Medical treatment involves a course of two types of medicines:
1) Immunosuppressants and steroids to reduce the inflammation
2) nonsteroidal anti-inflammatory drugs (NSAIDS) such as aspirin or ibuprofen for pain relief

There are many immunosuppressants available and it is possible that there are some that you haven't tried so far but which can help you. Newer drugs like rituximab and alemtuzumab are available but whether they would be indicated for you would depend on your diagnosis. You will also need a doctor who is comfortable with trying these new drugs and knowledgeable about them.

Life style changes are very important. Stress reduction, physiotherapy, stretching exercises, rest and relaxation and a proper balanced diet are known to help.

Myositis is best treated by doctors who specialize in it. The XXXXXXX XXXXXXX Myositis center in Maryland has some good doctors but it may be far for you and difficult to visit.

Alternately, joining a support group can help you find doctors near your home who have done good work in this field, in addition to helping you cope better. The Myositis Association (TMA) (website: WWW.WWWW.WW has support groups available in nearly all regions of the U.S., and you can contact them to be put in touch with one of their support groups. They also have an Ambassador program available for new members which is less formal than participating in a support group but gives new members the opportunity to speak with another member of TMA who has myositis and might be able to share some insights with you. In order to speak with one of their Ambassadors, you can either email at YYYY@YYYY or call 1-800-821-7356 and they will arrange for it.

Living with myositis is not easy and I hope this information helps make your life better.

Best wishes.

Dr Preeti Parakh
MD Psychiatry

Above answer was peer-reviewed by : Dr. Shanthi.E
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Dr. Preeti Parakh

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Practicing since :2002

Answered : 1486 Questions

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Are there any new treatments for myocitis?

Brief Answer:
Support group information given below.

Detailed Answer:
Hi,

Welcome to Healthcare Magic!

Myositis simply a general term for the inflammation of muscles. It is many types and the treatment depends on the type of myositis. Since you have this for a long time, I think you must be having one of the autoimmune types of myositis, like polymyositis or dermatomyositis. Often these are misdiagnosed as autoimmune myopathies have many of the same symptoms as those with inclusion body myositis, toxic myopathy, or muscular dystrophies, which are inherited forms of muscle disease.

As of now, there is no cure for myositis. However, proper management of the disease is critical in order to reduce inflammation caused by myositis and to prevent muscle weakness from progressing. There are two approaches to treatment for myositis:medical treatment and lifestyle management changes.

Medical treatment involves a course of two types of medicines:
1) Immunosuppressants and steroids to reduce the inflammation
2) nonsteroidal anti-inflammatory drugs (NSAIDS) such as aspirin or ibuprofen for pain relief

There are many immunosuppressants available and it is possible that there are some that you haven't tried so far but which can help you. Newer drugs like rituximab and alemtuzumab are available but whether they would be indicated for you would depend on your diagnosis. You will also need a doctor who is comfortable with trying these new drugs and knowledgeable about them.

Life style changes are very important. Stress reduction, physiotherapy, stretching exercises, rest and relaxation and a proper balanced diet are known to help.

Myositis is best treated by doctors who specialize in it. The XXXXXXX XXXXXXX Myositis center in Maryland has some good doctors but it may be far for you and difficult to visit.

Alternately, joining a support group can help you find doctors near your home who have done good work in this field, in addition to helping you cope better. The Myositis Association (TMA) (website: WWW.WWWW.WW has support groups available in nearly all regions of the U.S., and you can contact them to be put in touch with one of their support groups. They also have an Ambassador program available for new members which is less formal than participating in a support group but gives new members the opportunity to speak with another member of TMA who has myositis and might be able to share some insights with you. In order to speak with one of their Ambassadors, you can either email at YYYY@YYYY or call 1-800-821-7356 and they will arrange for it.

Living with myositis is not easy and I hope this information helps make your life better.

Best wishes.

Dr Preeti Parakh
MD Psychiatry