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What causes drop in heart rate when suffering from dysautonomia? - Online Doctor Chats

Date : 20-Apr-2014
User rating for this question
Very Good Posted in: Hypertension and Heart Disease
Answered by

General & Family Physician
Practicing since : 2005
Answered : 2408 Questions
User:I have dysautonomia and svt. I'm 25 and lean. When I stand sometimes my heart rate will drop and sometimes it will go up to 140. When sitting I've had my heart rate drop to the 40s and go up to 130s. What are my risks of heart failure, stroke, and heart attack. Also 5 months ago I was admitted into the er for stroke-like symptoms, and was later administered TPA and hospitalized. After several CT scans there was no sign of a stroke, and also for 2 weeks I had right hemiparesis. I also have a pacemaker. Just wondering if anyone has seen this happen to Dysautonomia patient
Doctor:Give me a moment to read your query
Doctor:I have read your query
User:I also take midodrine, atenolol, and digoxin.
Doctor:With dysautonomia there is disturbance of heart rhythm, blood vessel, blood pressure etc
User:Have you seen a patient that exhibits these issues?
Doctor:I have not seen such issues in dysautonomia
Doctor:Usually the issues are benign and not XXXXXXX
User:With my heart rate fluctuating as it does, what are my risks long-term in your opinion
Doctor:These issues will tend to remain as such
User:I also flatlined on a tilt-table test
User:What field of medicine do you specialize in?
Doctor:These happen due to response to receptors to hormones
Doctor:I specialize in general medicine
User:Do you know of any doctors that specialize in dysautonomia in the southeast
Doctor:Can you specify your area?
User:My symptoms have become so aggressive that I'm on disability
Doctor:What symptoms are you having?
User:Alabama, Mississippi, Tennessee, XXXXXXX Florida
Doctor:And how it started?
Doctor:Is it secondary to some other condition?
User:Dysautonomia is the primary and my symptoms are a result. Example, abnormal dilation of my pupils, blurry vision, staring spells, low blood pressure, low and high heart rate, temporary paralysis, dizziness, heat intolerance, exercise intolerance, and many more
User:Started when I was 12
Doctor:- Vanderbilt Autonomic Dysfunction Center in Nashville, TN (615-322-2318)
User:Symptoms have added as I've gotten older and has become less controllable. When I flatlined I was on medicine that was supposed to prevent it
Doctor:If it is primary then it may be part of a syndrome
Doctor:like Shy Drager syndrome
Doctor:or some other syndrome
User:I didn't have problems with svt until last march.
Doctor:Some syndromes are progressive while others are slowly evolvinmg
Doctor:Mostly you will be given symptomatic treatment
Doctor:In your case it is developing relatively slowly
User:I have taken over 14 different meds since age 12. They work for a few months then they have to change
Doctor:The symptoms like dizziness, etc may be hard to control
Doctor:But otherwise I do not think that there may be stroke etc
Doctor:Since large variations in blood pressure etc should not be there
User:I can't stay in one position very long because I space out. Sometimes I can hear people but either I can't speak or my speech will be slurred
Doctor:It seems to be because of low blood pressure
Doctor:When blood pressure is low it affects brain functioning
User:I also have anxiety because of the sudden changes of my blood pressure, body temp, heart rate, etc
Doctor:I understand it can be anxiety provoking
Doctor:Mostly just managing the symptoms is needed
Doctor:Do you have rigidity of muscles?
Doctor:Are you there?
User:What's strange during the tilt table test. I starting exhibiting symptoms of numbness from the waist down, left arm shaking, dizziness, nausea, tunnel vision, and slurred speech all whole my blood pressure and heart rate where normal. Nurse told me afterwards that she literally blinked and my stats went from 118/ 78 and heart rate 79 to 0 heart rate and blood pressure in a split second
User:What do you mean by rigidity
Doctor:It al;so has explanation
Doctor:It is part of dysautonomia
User:Why is there no cure
Doctor:When you bend your arms or legs, there is some rigidity
User:Like tension?
Doctor:Yes you have stress a little to stretch your arm
Doctor:You have rigidity in legs
User:Gets worse when standing
Doctor:So you are having parkinson like symptoms
User:I've been told I have few
Doctor:Check with your doctor if you have Shy Drager syndrome
Doctor:If it is, then it may deteriorate
Doctor:I am sorry to be saying this
User:Do you have any patients that have dysautonomia
Doctor:I just mean it is a possibility
Doctor:Not at present
Doctor:But I understand this condition
Doctor:Due to interest in autonomic nervous system
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