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Treatment for Systemic lupus erythematosus - Online Doctor Chats

Date : 13-Jan-2012
User rating for this question
Excellent Posted in: Lupus
Answered by

General & Family Physician
Practicing since : 2004
Answered : 40 Questions
Doctor :   Hi
Doctor :   How can I help you
User :   hi good morning
User :   im on wysolone from past 2 years ..this making my face round
User :   how do i get rid of this ??
Doctor :   WHy were you put on it
User :   i have lupus
User :   SLE
Doctor :   ok
Doctor :   What other medicines are you taking
User :   celcept (1-0-1), HCQS(0-0-2), fefol(1), calcigaurd retard(1),macalvit(1),wysolene(10mg)
Doctor :   Ok
Doctor :   Look the Lupus has the property of long term treatment
Doctor :   to reduce the flares of attacks one has to be on the steroids like Wysolone
Doctor :   But you can taper the doses on and off and be put depending on the responses
Doctor :   did yoiu discuss with your rheumatologist
User :   yes
User :   i was put on 60mg initial its 10mg...he ask me to reduce it depending on my report
Doctor :   so what is the report
Doctor :   were the antibodies done?
User :   haemoglobin seems fine...only probelm with WBCs and albumin
User :   if albumin is found, i need to increase my dosage
User :   u mean ANA?
Doctor :   s
User :   yes
User :   positive
User :   i loose lot of hair
User :   alopacia
User :   im takling elvion too
Doctor :   ok
Doctor :   It is tough to withdraw from the wysolone now
Doctor :   never stop taking steroids suddenly
User :   hmm
Doctor :   they cause many untoward effects
User :   yes
Doctor :   the steroids are to be slolwy tapered
User :   i cannot live without wysolone
Doctor :   and did the doctor discuss with the immunomodulators
User :   my body get stiff
Doctor :   I can understand that
User :   immunomodulators ??
User :   what does they do?
Doctor :   They improve or stabilise the disease activity
Doctor :   it is monoclonal antibodies
Doctor :   Whom are you treated with now?
Doctor :   which specialist?
User :   ok..i'll discuss with him
User :   Dr.
User :   he's a rheumatologist
Doctor :   Rheumatologist??
User :   yes
Doctor :   ok
Doctor :   You can take FISH BODY OIL as they contain the Omega 3 FA
Doctor :   wihch improves the stiffness
Doctor :   and the healthy to the blood vessles
User :   im vegan
Doctor :   these are tablets
Doctor :   you can get it
User :   ok
Doctor :   For Details Visit and Buy the product
Doctor :   Can you elaborate what is celcept?
Doctor :   this is a brand name
Doctor :   i want the generic name
User :   immunosuppresor
Doctor :   I know the class of drug
Doctor :   but the generic name
User :   roche
Doctor :   written on it
User :   one sec
Doctor :   You can follow this link
Doctor :   for a better information
User :   mycophenolate mofetil
Doctor :   ok
User :   so no remedy for puffiness??
Doctor :   Once the steroids are tappered the puffiness comes down
Doctor :   as such nothing can be done actively to prevent it while on steroids
User :   i have observed that exercise reduce swimming and yoga...but im not sure
Doctor :   Have you gone through the link
Doctor :   i gave you
User :   going thru
Doctor :   Yes absolutely
Doctor :   you should continue to improve the quality of life
Doctor :   Although distressing, hair loss associated with lupus is almost always temporary
User :   yes
Doctor :   usually grows back with treatment of the lupus
Doctor :   any skin changes??
User :   i'll loose hair and get it back within months
User :   my skin has turned dark
User :   tanned i can say
User :   no allergies
User :   i have history of dermatatis
User :   due to parthenium
Doctor :   ok
Doctor :   so did you avoid it?
User :   its seasonal
User :   now i dont have
User :   childhood i had
Doctor :   that is fine
User :   and bit asthama too
Doctor :   the affect wont be this long
Doctor :   the tanning when did it start
User :   two years back
User :   suddenly
Doctor :   Wn ws the diagnosis of lupus made?
User :   same time
User :   two years back
Doctor :   so what is the first symptoms
Doctor :   and can you describe the sequence of events
User :   i used to get these frequent chills with fever
User :   high temperatures...very high...but it wud vanish in mins
Doctor :   ok
User :   started loosing my apetite
User :   under weight
User :   then morning stiffness
User :   they diagsed it as reumotoid fever
Doctor :   ok
Doctor :   then the ANA are done
Doctor :   right?
User :   they gave me 12 days pencilin
User :   nopes
Doctor :   ok
User :   then they diagnosed it as TB ...dont knw wat made them to come to that conclusion since i dint have any caugh
User :   may be i have this symptom of evening fever
Doctor :   ok
User :   i was put on TB medicine for two months ..i dont remember names ...that tablet was of orange color
Doctor :   i know
Doctor :   you continue
User :   one fine day , i went out in sun(afternoon), and i started to feel that my brain getting was like going off and on...i dint faint ...
User :   that evening i cudnt get up or move an inch ...i started to feel the stiffness
User :   earliar it was only with hands...they said its something migrating ruemotiod..
User :   later the very next moring i was fine, evening my body cundnt move..
User :   i was brught and taken to TB splist
User :   then one of them said its no TB at all..then he recommened me to Dr.
User :   then all tests including ANA was done...he diagnoised Lupus
User :   since then im on those medicines
Doctor :   ok
Doctor :   thts is fine
User :   earliar i used to take azathioprine
Doctor :   Lupus is a not a common disorder to diagnose with hence it took time
User :   later he changed it to cellcept
Doctor :   ok
User :   i have to be on these medicne whole my life??
User :   i had herpes once
Doctor :   Yes but in minimal doses
Doctor :   if the attacks come down
Doctor :   then there is an option of maintatinece therapy
Doctor :   or completely stopped
User :   shud i go for ayurvedic since i had many contradictions??
User :   i cudnt go out anywer friends make fun of me
Doctor :   If your medications aren't controlling all of your signs and symptoms you can seek them
Doctor :   i think the doctor should be open to discuss with yu about it
User :   ok
Doctor :   please confirm the details we may send you good information if we research on
User :   yes
Doctor :   anything else
Doctor :   Pl fill tbe feedback form
Doctor :   and say done when done
User :   done
Doctor :   Your case requires undivided attention and as I am chatting with few other patients. I can get back to you
Doctor :   ok
Doctor :   or you can come back for other queries
Doctor :   Bye
User :   sure
User :   bye
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