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Treatment for Cystic Fibrosis in child - Online Doctor Chats

Date : 21-Feb-2012
User rating for this question
Very Good Posted in: Lung and Chest disorders
Answered by

General & Family Physician
Practicing since : 2005
Answered : 2570 Questions
User :   Sir,i have a daughter aged 12 years.Since las few years,she has developed thick deposits in her left lobe resulting occasional fever,loss of appetite,under development,short of breath etc.
Sir,we have been consulting and treating her as and where advised.
At present,she is being treated at for CF where she has a sweat chloride test with border line values and then genetic test for delta 508 with negative results not only for her but for both of us as well.
Sir,it is since last one and half year that she is being treated there for CF with no visible improvments.
A few days back,she devloped fever with heavy chest congestion unableing her to swallow anything.
Pls. advise wht shoul i do now                                                            
Doctor :   Hi
Doctor :   Dr here
Doctor :   Let me read your query
User :   hello
User :   ok
Doctor :   Since how lons is she having these problems?
Doctor :   *long
User :   since last 6 ,7 years
User :   ya
Doctor :   Do you mean Cystic Fibrosis by CF?
User :   ya
Doctor :   Has her condition deteriorated during this period?
User :   butt tes for delta 508 is negativet
User :   no,remained stable
Doctor :   Ok
Doctor :   Does anyone in your family has it, because Cystic fibrosis is an inherited disease of your secretory glands.
User :   no
User :   both of us have negative result
Doctor :   The management of CF is proactive treatment of airway infection, and encouragement of good nutrition and an active lifestyle.
Doctor :   The most consistent aspect of therapy in cystic fibrosis is limiting and treating the lung damage caused by thick mucus and infection, with the goal of maintaining quality of life.
User :   ya
Doctor :   Management of cystic fibrosis continues throughout a patient's life, and is aimed at maximizing organ function, and therefore quality of life.
User :   but she has a negative result
Doctor :   So the first step should be that her lung infection is to be treated properly.
User :   for delta 508
User :   ya
User :   in fact,lung malfunctioning causing a lot of troubles
Doctor :   It is good that her tests are negative, has she undergone CF gene testing also?
User :   can we reassure about she havinf CF?
User :   ya
User :   ya
User :   and negative
Doctor :   A saliva sample is to be tested for confirming any faulty gene, has it been done?
User :   no
User :   only blood
Doctor :   Was her chest X ray, sinus X ray and sputum culture done?
User :   no
Doctor :   Sputum culture and saliva can confirm it, you can go for that.
User :   ya
User :   Where?
Doctor :   The goals of cystic fibrosis treatment are to: Doctor :   Prevent and control lung infections
Doctor :   Loosen and remove thick, sticky mucus from the lungs
Doctor :   Provide enough nutrition
Doctor :   Prevent dehydration
User :   ya
Doctor :   There is no as such treatment but you can improve the quality of life only.
User :   but pls. first advise
Doctor :   I am in and i do not have any idea about the test in
User :   to diagonse it properly
Doctor :   Yes you can go for thest
Doctor :   Are you back?
Doctor :   *test
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