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Suffering from Wilson's disease - Online Doctor Chats

Date : 21-Feb-2012
User rating for this question
Very Good Posted in: Liver and Gall Bladder
Answered by

General & Family Physician
Practicing since : 2004
Answered : 1773 Questions
User :   Dear respected sir, my younger sister is suffering with very rare disease called "WILSON DISEASE". Can you please how to treat this disease
Doctor :   Hi
User :   may i know from where you are from?
Doctor :   India
User :   can you please respond to my above query
User :   ok , gr8 sir
User :   are you into which department ??
Doctor :   the treatemnt for the disease is by copper chelation using chelating agent like penicillamine
User :   just 3 days back we have started giving penicillamine
User :   ok
Doctor :   good , this will help
Doctor :   but in later stages or in severe Liver transplant would be a resort
User :   along with pencilliminia she is taking zinv and pacitone
User :   like other tablets she is taking
Doctor :   ok, fine
User :   really appriciate your best suggestion?
User :   shall we meet "gastroentrology" or Neurology Drs??
User :   ok
User :   currently we are dealing this case with Neurology only?
Doctor :   first approach would be to gastroenterologist later on his advice you can consult a neurologist
User :   ok sir
Doctor :   it needs an integrated approach by both
User :   ok
User :   as per your knowledge how long it will take to overcome from hand trimmers and like not able speak
User :   currently she is not getting words freely and hand trimmers are thtre
Doctor :   the symptoms do come down in a bout 2 to 3 weeks of initiation of the treatment
User :   o sir
User :   ok* sir
Doctor :   but the over all prognosis of the illness can be decided over Serum copper levels ceruloplasmin levels and LFT
User :   ok
User :   is this lever transplantation reauired for every one??
Doctor :   no ,
User :   ok
Doctor :   only in very severe cases , based on the findings in the liver biopsy
User :   i have the reports with me , if you give me the permission , will scan and send it to u
Doctor :   yes., sure
User :   ok , thanks a lot sir
User :   my parents really really worried about her health condition , and that too my sister is day by day she is really going very depressed state
User :   ok sure
User :   your kind help and suggestion is reauired in this case
Doctor :   do not worry , your sister being depressed can be due to illness again
User :   till now we are in a state where to go and whom to meet
Doctor :   once the illness comes down , the depression and anxiety will surely come down
User :   now i cleared with gr8 suggestion
User :   ok sir
User :   can you please suggest me one thing , is this pebncilliminia is lifetime drug??
User :   just 3 day back we have started this "pencillimini"
User :   ok sir
Doctor :   its well known , i do not have much information about their dealing with Wilsons disease , but here are good neurologists and gasteroentrologists
User :   ok
User :   what kind of side effects from pencilliminia"
Doctor :   well the treatment with pencillamine is not for long term
User :   ok gr8
Doctor :   the duration depends on the lab reports
User :   currentlu we are giving 1 tablet fr day
Doctor :   ok,fine
User :   what the DR suggested is after one wek , she can go fr BOD
User :   bio fr day
Doctor :   ok,
User :   can you give me some precaustions need to followed
Doctor :   yes, avoiding copper containing foods is a important step in prevention
User :   we are not clear about these things
User :   to follow the best one , what is teh best way
Doctor :   like liver , shellfish , chocolates , dry nuts like pista , mushrooms etc
User :   already we are avoiding above ones
Doctor :   and to consume food rich in fiber
User :   and to consume food rich in fiber ... canyou please brief this ANS please
Doctor :   consuming foods like Apple , banana , isobgol will help
Doctor :   And consuming more water is very helpful here
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