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Information about thalassemia - Online Doctor Chats

Date : 13-Jan-2012
User rating for this question
Very Good Posted in: Blood Disorders
Answered by

General & Family Physician
Practicing since : 2004
Answered : 40 Questions
Doctor :   hello
Doctor :   how can I help you/
User :   What is the average life-span for thallasemics?
Doctor :   are youa thallasemic?
Doctor :   minor/major?
User :   no my friend is...
User :   major
User :   she needs transfusions..
User :   every 15 days
User :   she is 22.
Doctor :   ok
Doctor :   does she have any bone deformities?
User :   no. none.
Doctor :   Does she have to be admitted often for anything
Doctor :   other than transfusion?
User :   no. no other major issues. just regular transfusion and daily medicines.
User :   I just want to know whther she can lead a normal healthy life...and if there is any constant degeneration of any body part.
Doctor :   People with thalessemia need regular and continous treatment
Doctor :   She will require regualar chelation- that is aprocess
Doctor :   to remove
Doctor :   excess iron- that is deposited because of her continous
Doctor :   nedd for blood transfuaions
User :   ok. so if the chelation is done regularly and properly then the person can have a normal life-span like any other person?
Doctor :   Bone marrow transplants offer better prognosis
User :   what is prognosis?
Doctor :   and it is usually ideally - best done in children under 16 yrs of age.
Doctor :   Prognosis is the way a disease progresses-
User :   ok. so what now? Can she get married and have children? Can she get pregnant? And if she gets pregnant, will she transfer the problem to her child?
Doctor :   There is also the increased risk of diseases spread by bllod
Doctor :   like hepatitis B or C
Doctor :   No, though improvements in treatment improve the quality of life
Doctor :   Over time the regular blood transfusions
Doctor :   leading to excess iron
Doctor :   does affect various parts of the body
Doctor :   r u thr?
User :   what about pregnancy and child birth?
Doctor :   It differs from Induvidual to individual
User :   so there is a chance that the person can have a normal child?
Doctor :   hel
Doctor :   Sorry problem with the chat window
User :   ok
User :   so there is a chance that the person can have a normal child?
Doctor :   Im not 100 percent sure about pregnancy
User :   ok. no problem. but what kind of life-span can she expect? 30? 40? 50?
Doctor :   The doctor treating your friend will be in a better position to judge that
User :   ok
Doctor :   untreated cases have a lifespan of 20-30
User :   thank you doctor. its a little sad but thanks for the info.
Doctor :   it is much better with treatment
User :   what do you mean with treatment?
Doctor :   Like your friend is getting.
Doctor :   Bone marrow transplant is the only cure
User :   oh ok!
User :   thats all I need to doctor.
Doctor :   But it has to be perfectly matched-
Doctor :   usually a siblings bone marrow is used
User :   thank you doctor. thats all I needed to know.
Doctor :   you're welcome
User :   thank you very much.
User :   bye
Doctor :   have a nice day
User :   you too..
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