[Hi my son having LCH from birth. Liver spleen and lung involvement.Now 1 year 10 months old. We have diagnised and treated with vinblastine and prednisolone initally. It was partially responded. After one year of... View answer

I was just told this week that I have sinus histiocytosis with hemosiderosis . I am a nurse but have never heard of this disease and want more information. Specifically why does it have to be treated ... View answer

, they said he didnt have histiocytes, which is found in histiocytosis . he was seeing a neurologist for severe headaches . so could this be a form of histiocytosis. ... View answer

hi doc , my mother 63 yrs old recently had an excision biopsy for a lump at upper back . she had no pain or other constitutional symptoms. biopsy was reported as histiocytosis with marked lymphadenopathy ... View answer

Hello, I have a bit of an unusual situation. I have Histiocytosis X. It has affected multiple organs in my body in harsh ways over the years. I just went through Lumbar Facet injections this past ... View answer

Hi, may I answer your health queries right now ? Please type your query here...have been diagnosed with Pulmonary langerhans Histiocytosis X. 63 y/o white male and have been told my only hope for the ... View answer

I have been diagnosed with Pulmonary langerhans Histiocytosis X. 63 y/o white male and have been told my only hope for the future is a lung transplant. My PFT shows 26% lung capacity and my carbon ... View answer

My daughter was diagnosed with histiocytosis at two months of age and had a growth removed she is now 18 and I feel she is having some symptoms like weight loss, loss of appetite, vomiting, etc I live ... View answer

[Was treated at age 6 months and diagnosed with FMF. New oncologist believes that I have LCH disease. right lower lung is collapsing, lymph nodes all over body, spince is curving, blood work not good. Lesions found by... View answer

I have previously been diagnosed with histiocytosis with massive lymphadenopathy. I have also ... is, could all my symptoms be related or is each separate? If related what else will I have to look ... View answer