[Hi my son having LCH from birth. Liver spleen and lung involvement.Now 1 year 10 months old. We have diagnised and treated with vinblastine and prednisolone initally. It was partially responded. After one year of... View answer

I have recently been diagnosed with Langerhans Cell Histiocytosis . About 3 weeks ago I was in the hospital with acute bronchonitis and had 2 iv antibiotics, steriod iv every 6 hours and breathing ... View answer

I was just told this week that I have sinus histiocytosis with hemosiderosis . I am a nurse but have never heard of this disease and want more information. Specifically why does it have to be treated ... View answer

, they said he didnt have histiocytes, which is found in histiocytosis . he was seeing a neurologist for severe headaches . so could this be a form of histiocytosis. ... View answer

Hello, I have a bit of an unusual situation. I have Histiocytosis X. It has affected multiple organs in my body in harsh ways over the years. I just went through Lumbar Facet injections this past ... View answer

[Was treated at age 6 months and diagnosed with FMF. New oncologist believes that I have LCH disease. right lower lung is collapsing, lymph nodes all over body, spince is curving, blood work not good. Lesions found by... View answer

hi my name is mike i live in rockford illinois. i am 53 and have had langerhans cell histiocytosis for 17 years . my ears right now r constantly draining my doctor has had me on anibiotics twice with ... View answer

Have you heard of Langerhans Cell Histiocytosis before and if so can it come back after being removed ?? I had a very rare case of it back in 2012,it was found in my right eye, I m noticing my vision ... View answer

Langerhans Cell Histiocytosis - My sister has just been diagnosed with Langerhans, her symtoms are? rash on her head, under her arms and her upper thigh area. Doctors have given her antibiotics and are... View answer

My sister is in hospital with multifocal Langerhans cell histiocytosis. She has it in her skin, liver, and pituatary as well as lesions on her shin bones. She finished a 5 day infusion of chemo ... View answer