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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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What Is The Remedy For Symptoms Pointing To Lupus?

I will be 30 in just 6 days, and for the last few years I ve been through the ringer and back! In 2010, During an ultrasound(for stomach pains,) they accidentally found a tumor on my right kidney. April 25th, 2010, I had a partial hysterectomy, due to scare tissue attaching my uterus to my abdominal wall. My Gyno said said it looked like I had adnomyosis. Fast forward a few months, and on August 25, 2010 I had a 2 inch begnin angiomyolypoma removed with part of my right kidney. On my year checkup, they found another tumor, and they ve been watching it, but it hasn t grown much. In 2012, I started having crazy symptoms, I was tired all the time, my whole body hurt, joints hurt, etc.. Well, after numerous tests, I was diagnosed with narcolepsy and cataplexy, and the rheumatologist said that the closest thing he could pin point was lupus, but I didn t have a rash, so he still wanted to do more test. After starting xyrem, for narcolepsy, I felt much better, and I almost felt normal. (I could deal with the rest of the symptoms(so I thought) and I stopped going to the rhumetologist. Well, a few months ago,(I started a new job) and I noticed these symptoms that come and go: a rash on my face, across my nose and cheeks, headaches almost every day, joint pain (pain travels from joint to joint,) ulsurs on my tongue and in my mouth,) pimple like things that are under the skin on my face upper chest and upper back, that hurt like heck and they usually go away on their own, but scars the place that it s at, excess fatigue, pimple like (small) sores in my hair, on my scalp, and lastly, the thing that scared me into going back to the rhumetologist, my toes/feet turn blue (it doesn t matter if I m sitting or standing) but when it s really cold, they turn white. Can you please give me some ideas on what is going on with me, so I can pass it by my rhumetologist? Is it all connected, or am I just a freak of nature? P.s. My ANA blood test did come back positive.
Sat, 31 Jan 2015
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Rheumatologist 's  Response
Since your ANA is positive there is a definite evidence of lupus but I would suggest you to get ENA profile also , anti ds DNA levels also.
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What Is The Remedy For Symptoms Pointing To Lupus?

Since your ANA is positive there is a definite evidence of lupus but I would suggest you to get ENA profile also , anti ds DNA levels also.