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Dr. Andrew Rynne
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Dr. Andrew Rynne

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Exp 50 years

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What Could Be The Reason For The Death Of A Child?

my son had cystic fibrosis, he had meconium ileus at birth and had complications post surgery with blockages and spent 2 months in nicu. He passed away july 3 2014, he just turned 2 years old may 30th 2014 , he had developed a routine blockage (happened about 5 times since leaving nicu) and everytime we would bring him directly to ER they would ask us only to bring him if he shows signs of dehydration, fever, or any signs of abnormality with his usual self, or if symptoms do not get better after 48 hours (throwing up, no stools, etc.) now on july 2nd he started his throwing up so we knew he had gotten a blockage, we followed orders and started miralax treatment right away, throughtout night he continued throwing up (same as other times, and usually passes big stool on 2nd day and is back to normal) we dont know what happened on july 3rd but at around 12pm he started to act funny and talk funny, as if he wasnt getting enough oxygen to his brain, his pupils got a little big, abdomen seemed a bit larger then it was few minutes before, and within a minute or so, he just stopped......... ambulance came and said he was already passed etc etc. they wrote on his death certificate intestinal blockage, cystic fibrosis and aspiration, am i right to believe that what happened to him mustve been septic shock? there was no autopsy performed, but i think maybe his intestine ruptured throughtout the night? thank you for any answers, it was literally 24 hours of a blockage.
Mon, 4 May 2015
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Pediatric Surgeon 's  Response
Hi, welcome to healthcare magic. Sorry to hear the demise of your child. Meconium ileus and cystic fibrosis may present in spectrum as they can be severe in some cases and in some cases usually not very severe. But, complications may be many. Cystic fibrosis can lead to formation of viscid mucus plugs which can lead to blockage of the airway leading to hypoxia and death. Usually, blockage of intestine resulting in rupture of intestine or intestinal perforation is not very common in infants. The intestinal obstruction will present as abdominal distension and vomiting commonly. But, in children with cystic fibrosis and meconium ileus, there is chronic electrolyte abnormalities and this may also lead to sudden cardiopulmonary failures leading to death. This is usually the most common cause of deaths in children of cystic fibrosis. It may present as altered mental status and lethargy, abdominal distension and irregular breathing and irregular heart rate and rhythm.
Hope you have got the answer and may your child's soul rest in peace.
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What Could Be The Reason For The Death Of A Child?

Hi, welcome to healthcare magic. Sorry to hear the demise of your child. Meconium ileus and cystic fibrosis may present in spectrum as they can be severe in some cases and in some cases usually not very severe. But, complications may be many. Cystic fibrosis can lead to formation of viscid mucus plugs which can lead to blockage of the airway leading to hypoxia and death. Usually, blockage of intestine resulting in rupture of intestine or intestinal perforation is not very common in infants. The intestinal obstruction will present as abdominal distension and vomiting commonly. But, in children with cystic fibrosis and meconium ileus, there is chronic electrolyte abnormalities and this may also lead to sudden cardiopulmonary failures leading to death. This is usually the most common cause of deaths in children of cystic fibrosis. It may present as altered mental status and lethargy, abdominal distension and irregular breathing and irregular heart rate and rhythm. Hope you have got the answer and may your child s soul rest in peace.